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Contains Lactobacillus plantarum Lactobacillus rhamnosus Lactobacillus bulgaricus Lactococcus lactis Lactobacillus paracasei Nothing we haven't seen before in a probiotic but its all about the strain and whether its one found in humans or not. Its so hard to find quality probiotics that are...

Probably one of the most useful threads for occupational therapy is the retail therapy thread on phoenix rising were people have been sharing ways in which they do tasks for less energy. I have been cleaning my bathroom with a drill and brush attachment for example which is a lot less energy...

One of big problems is that doctors are more willing to diagnose Long Covid or ME/CFS if its preceeded with a hospitalisations from an infection. They have the clear cause and effect and the diagnosis is thus much easier. Those seriously ill at home can't be seen, can't get diagnosis and that...

My friend is a union rep and a long hauler, thankfully still able to work (Dr Patersons early protocol based around Niacin really helped them). They have been doing a lot of capability hearings around reduced function of lots of staff, clearly they have Long Covid in my friends opinion, the mix...

I did a biomesight microbiome test last year and came out with the classic defiencies usually seen in ME patients. I also still hold the record (100% of all patients) for no less than 15 known baddies, no one has more than I do! Oddly otherwise my biome was OK, they certainly weren't concerned...

People with more severe symptoms and pain don't walk as much because it hurts them more. Or as they are biasing this using "pain catastrophizing" those that walk less are in more pain because they walk less. Its not hard to see it doesn't naturally follow.

I think if the narrative around illness changed and people were told to rest due to the chance of developing chronic illness after a link was established in research then it could be quite valuable. But it would take generations of that message and understanding getting deeper and treating our...

It feels so out of reach to get to the basics that a severe patient if being seen in a hospital gets a darkened room that is quiet where they can lay safely and bring their own medication and then only one doctor ever comes in to make any essential conversations minimising concern and they do...

The bigger question is why is the NHS is willing to fund departments that don't follow the guidelines? Why would you pay for departments that are harming patients willingly? Name and shame is a start if you expect them to change at some point soon its been nearly a year since the guidance change...

Definitely do this. I would love for their to be a place to report and potentially list individual doctors as well, ideally one that the team can contact directly to correct their beliefs and potentially send for retraining. I firmly believe fixing the NHS is going to require a lot more than a...

I think I am on the lower end of that scale, I tend to get PEM the next day after an exertion the prior afternoon, so around 14-16 hours. But I also get a pretty good predictor when I try to sleep and can't and that will happen just hours after an exertion. I do wonder if getting to sleep...

As far as I know the plan in the autumn in the UK seems to be only to give this booster to the over 50s or those clinically vulnerable, with ME/CFS patients currently excluded from the CV group. Not that it would be easy to go and get a vaccine in the arm at the moment but its not going to be on...

These questionaires are so incredibly biased on the premise that cause is worry that they don't even seem to bother to try and separate the concerns apart. Its no wonder the studies based on this garbage keep coming back with positive improvements simply by telling their patients to worry less...

Once you have been caught making findings up in your abstracts any respectable journal should blacklist you completely. Why continue to let dishonest actors publish false papers, it only hurts the reputation of the journal at that stage and more widely science. When someone tells you who they...

The potential of such a solution depends on the university having peers who would genuinely provide opposition to a bad papers, which given its often a consistent bend on the world I find it hard to believe such opposition would remain in a university for long, it would quickly be untenable for...

For a disease with no diagnostic tests there are sure are a lot of biomarkers for ME/CFS! But hey who doesn't like a misleading questionnaire instead?!

The problem with calling a new disease where every test has shown it to be the same is you waste an awful lot of time trying the same thing and getting the same results. That is one way to blow a billion dollars, repeat all the research of the prior 40 years and do it 4 years instead. Science...

At one point there was no doubt I had POTS, the blood pressure and heart rate changes were really clear. Nowadays however I don't qualify for POTS, I just have OI and its completely different its based on how long I am upright its more a fatigue impact that gradually degrades my bodies ability...

Thomas Delauer a few years ago tested his own response to the various sweeteners to see which caused an insulin response using a continuous insulin response patch. The results were quite interesting and he showed some of the sweeteners did spike his insulin. I seem to recall a few of the keto...

Its quite insidious given the situation in the UK has been to take criminal action against parents who keep their children at home when they are too ill to attend school due to ME/CFS. The historical context is that Crawley et el have been forcing these parents to force their children to...