Search results

Needs a control. Given the bulk of long haulers appear to recover doing nothing at all its not enough to see improvement, it needs to exceed the average improvement with no intervention.

A bunch of people have reported that having the Covid 19 vaccinations of various types have left them with Long haul symptoms. Most of the places on Reddit banned them for misinformation about the vaccination but a few have survived and been accepted as part of the covidlonghaulers subreddit. I...

No thanks. I'll wait until you have worked out how to avoid the liver and brain damage!

The anglosphere decided after 1.5 years they didn't care about protecting the old and disabled anymore and went back to normal. There never was any real disabled provision for healthcare if you weren't able to go to outpatients and they didn't bother to add any just for Covid. The most...

I find this end of the research quite interesting. More and more we are finding that depression and anxiety might actually be strongly linked with the gastrointestinal system. It is pretty clear that a modern, especially city dwelling, human has quite a substantially different gut microbiome to...

Mental health services abusing patients wont come as a surprise to ME patients but now it appears the BBC managed to get some footage of it happening undercover. https://www.bbc.co.uk/news/uk-63045298

I don't really see a lot of point in ME/CFS and Long covid specialists at this point if they aren't doing research. Your local GP could be throwing pain and sleep meds your way to reduce the severity of the condition and a leaflet on the condition and how to pace with a link to the guidelines...

It really highlights how good people can ultimately be forced into treating patients badly and endangering them with systemic choices they have no power or control over. The medical environment is what is broken and quite a few of these choices forced were bad doctoring but also by funding and...

If they admit that isn't true they also have to admit to 80 years of mistreatment that led to having no clue what to do with the mass of people now reporting the same condition. There is zero chance medicine, regardless of the evidence, ever admits to what it has done with ME/CFS and other...

Management of ME is basically "stop living and just exist". Unable to work, see anything, do anything etc etc its hardly any form of life. If they are going to just define recovery as not bothering the NHS then we may as well just start an assisted death program instead, that would also result...

He is just wrong. Reductions in VO2 max have been found in the first CPET on ME patients and a subsequent reduction on the next day has been shown which is contrary to control behaviour that get mildly better results. So on the first exercise there is already indications on objective measures...

My concern is also that the more severe patients are the ones more likely to be suffering from severe and common co morbidities as well. The criteria may be selecting out the most severely impacted or the co morbidity that is actually most indicative of the disease process. Its certainly...

Way too high. When I was severe even with it counting my arm movements I rarely got above 100.

Other than the already 7.5% of the population who have long covid and all the dead. Its insane really to be dismissing something as over that is the third biggest killer in the world right now and its probably made 5-10x as many ME/CFS patients as existed before already. Its the sort of...

Is this actually proven science? People talk about it like its the case but so many examples of this have actually resulted in being biological conditions that I am not so sure this basic statement can assumed to be proven true. I think at its heart its probably not true and if it is then its no...

The big problem with continuing to fund these Psychology based doctors is they continue doing it to ever more people. Most of my condition was caused by Covid, yet in September 2020 as I am bedbound after having had Covid in Feb 2020 and been bedbound since March Dr Chalder spent the entire...

Huh all I need is a water feature in my back garden and I'll be cured?!

I wouldn't mind if I got a psychological diagnosis if the treatment actually worked, but it doesn't. Its a useless diagnosis to provide especially having done no testing whatsoever and it means whatever is really wrong is not being addressed. If at some point they could actually show some...

Wounds leave scars, in my experience mentally too. Not one of the horrific events in my life has done anything but leave bad memories my brain refuses to forget. IRL I'll play the person I mean to be stoic and in control but I just want to cry most of the time.

As far as I can tell doctors don't change their opinion on these sorts of things over their careers for the most part. Like 95% of people out in the world once they have learnt their profession they stick to what they know and don't keep up. With appointments getting shorter there is no time for...