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I think you are right, you have people still seeking diagnostics and treatment because they don't know better, they are pretty high users of services for a period (I certainly was in the beginning). Then they work out all they are getting is abuse and prejudice and they disappear from the...

The September one was also with the adjusted method as well, it was actually a surprise that didn't increase because they said the face to face meetings were causing some people to hide their condition due to abusive comments by the survey takers! So I think September and October are likely...

People who don't have a diagnosis yet are using more medical resources than those that do? Interesting finding sort of but the diagnostic process is pretty poor in the NHS so its not a wonder that when they continue to run the same tests for the 50th time with the same results it does ultimately...

It wouldn't have been bad 2 years ago. Nowadays I would have expected a lot more in there about blood and other tests GPs can use to find the condition that they have access to. Its not like we know nothing, we know a bunch of things about these conditions and doctors do have access to blood...

It looks like maybe 80% of Long haulers are reporting they "recovered" (might not mean they actually rid themselves of all symptoms) and yet this number just keeps going up. This is just scary amounts of disability and increases in disability, 300k extra in a month or so is insane.

I will actually be surprised if ME/CFS isn't one of them. The extent of the metabolic changes alone must be changing out sweat output and I can tell I smell different. But the bacteria/fungus on my skin has always changed, ever since I got ME I have had issues with fungal/bacteria growth in...

I hate being part of a group that knows its a conspiracy. Up until October 2021 we were all conspiracy theorists. Now we aren't quite the same but we definitely don't have mainstream acceptance. If you think about Youtube's guidelines our position is one of conspiracy and hence would/should be...

Quite a few long haulers seem to be going through the "great, bad, great, bad" cycle day after day and never recognising they are causing this boom and bust due to PEM. You can tell them what is happening but they have internalised deeply that Long Covid is not ME/CFS and they don't have that...

10 years this August, still counting, still can't get any diagnosis for what is wrong at all. Pretty classic ME/CFS presentation. Its why I laugh every time about the new NICE guidelines suggesting 3 months, its been 8 months with this new doctor and no progress so far. I have been discharged...

Pretty common in my experience anywhere you see Long Covid and medical staff commenting about it. The vast majority seem to believe its a fake illness. There is a reason the Psychologists were given free reign on ME/CFS and are now circling and inching in on the Long Covid territory too, there...

A look at whether Long Covid is actually helping ME/CFS research and patients coming to the conclusion that its not and Long Covid has reduced presence of ME/CFS and hasn't changed the research funding situation at all...

That is a lot of Long Covid patients that are going to get diagnosed with Anxiety due to stress while the completely fail to bother to test their blood and find metabolic issues and clots and everything else that goes wrong.

Can't wait to hear how the Psychologists and Pysio's fixed his broken belief and behaviour system that he couldn't exercise.

At this point if you are calling Long Covid "emerging" you just ignored 2 years and 8 months of really vast numbers of disabled people appearing, you can hardly consider yourself any form of expert if you think this is emerging at this point, that horse bolted over 2 years ago. Just as the...

Its really notable how much better Sweden is doing in recognition of Long Covid compared to the UK/US. I suspect around 90% of patients have been rejected, gaslit and the vast majority of doctors don't know what they are doing and more than half the clinics are torturing people with exercise and...

This is a really abnormal medical response to the disease given how usually its anxiety and your shoved out the door with an SSRI and nothing else and that is it. The vast majority of ME patients never get a diagnosis let alone this level of tests and treatment. This really speaks to me...

It matches their internal prejudices so they are just fine with it. Its just an extension of what they were taught and further what everyone in medicine has reinforced into them and the fact they have left a trail of destruction of wrong Munchausen and other somatic diagnoses isn't on their...

They don't even consider that maybe the pain patients are having, after surgery or a fracture, might actually be real?! Throwing Trauma and surgery together as equivalent is absurd. The "that are designed to modify unhelpful beliefs and behaviours" are continuing to complain to doctors it isn't...

I have author of the post tagged as "liar, unpleasant" and he has also been blocked which means he likes to personally attack people. I wouldn't consider this much of a source at all. It may very well be true but the person presenting it is not credible.

I think diagnosis is really important. Obviously patients deserve recognition and a lot of disability and other aspects will associated with diagnosis but I think an objective test will expose the real numbers of sufferers, stop them being tortured with GET/CBT and lift them from psychological...