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I am beginning to wonder if the entire "we need to take mental health more seriously and accept it" has ultimately led to giving an awful lot of power to a bunch of people who are just quacks with fringe nonsense ideas and the consequences for society will be devestating if we keep listening to...

Yes a big part of the intolerance is headaches and brain dysfunction. I loose coordination, start dropping things, forgetting why I am in the kitchen etc etc.

Likewise. Before I was pushed to exercise I did not have anything orthostatic, my condition was constant regardless of laying down, sitting or standing up. After the whopping crash the exercise caused that changed and I have had orthostatic problems. In me at least I can say the orthostatic...

My apparent completely repressed childhood trauma somehow caught up with me 12 years into my career after I had been running my own business for 4 years very successfully. I gave up a very successful career I loved to live in poverty because of that darn completely unknown trauma. Its powerful...

The Long Covid community has kind of set themselves up for a lot of suicides. By pushing two perspectives mostly, 1) You will get better and 2) researchers will cure you there hasn't been a lot of space for people to just grieve and accept their new disability. Now they are facing that stark...

They really do. I am also horrified how trusting they are and how many are ignoring other patients telling them to avoid exercise. One yesterday turned up in the CFS sub asking, having crashed themselves with exercise twice to severe condition with a treatment given to them by a Long Covid...

So surprising! They have been failing to produce the data on how 300k excess deaths have occurred on those on benefits for the past 14 years already.

2 years, no findings published by the NIH, little in the way of real research and 140 million estimated have lost the ability to live. This is a consequence of medicines hubris on post viral conditions and its fraudulent use of Psychology that has utterly failed to treat the disease in any way...

I think its worse than just its bad. A lot of it is on already discredited approaches and the only way to get them to show a result is to set the study up with a lot of bias, looks like intentional fraud. The studies in progress don't look any better, NICE 2021 hasn't changed much.

I don't think any patients think sleep is anything but a side effect. If you push to PEM your sleep gets worse, its not that the sleep goes first and then you suffer PEM its clearly the other way around. You can force your sleep with drugs and you wont improve your condition, they don't have any...

Already published first set of results of this survey on Twitter on Nattokinase brand comparisons and dosage -

They seem to be lumping Post Exertional mailaise into Fatigue for some reason. They have the usual list of symptoms but then they almost immediately blame the entire condition on sleep problems. They have PEM as the second most reported symptom but give it no real consideration at all. I find...

Optimal health program (LC-OHP) - Looks like GET and CBT Muscoskeletal pain involves looking for "physical and psychosocial consequences" causing the pain. "In addition, we will use psychological assessment tools to assess the severity of depression and anxiety, and self-efficacy and...

Without the treatments I take daily I tend to severe illness within two weeks, twice I have come off my drugs and twice its been bad news for months, very certain they do work. I can sustain moderate disease if I take them. The various papers on metabolic and energy issues around the disease...

As far as I know they no longer take the Hippocratic oath (https://hansard.parliament.uk/Lords/2014-12-11/debates/14121138000347/GeneralPractitionersHippocraticOath) and it was also changed in 1997 to be a much broader statement and its not done anymore. They can be driven by whatever they want...

Sounds like only mild sufferers given its on their facility and minimum adjustments are being suggested.

They fail to even consider the widespread phenomenon of under diagnosis or especially dismissive diagnosis based on Psychology. This has resulted in countless deaths and additional suffering and such an instance is once again in the papers this week. This is far more common in the UK and its one...

Are the clots not pretty universal? The immune system changes, the metabolic adjustments. We don't need a complete picture of the disease to start using these tests to confirm sufferers. Its infuriating that the world will happily roll on with a PCR test that is about 95% effective and a Laterol...

Every single time we deny there is a problem, we deny its not been contained and do everything far too late. Whether something turns into a big epidemic or pandemic seems mostly about transmission, we often manage to contain the low transmission stuff but otherwise around the world it will go...

So tempting to respond "sounds like anxiety to me", it is after all what my GP diagnosed me with so its probably what you have too, its what all Covid Long haulers have according to their doctors. I wonder how many anxiety diagnoses they gave out to long haulers?!