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When it matches with the patient experience I think its as representative as the patients who are saying they have a problem on social media. You either dismiss both or neither and that also means dismissing the opinions of all those on S4ME about their condition and treatment as well. Not...

Its been a while since anything came out of the DHSC, beginning to get concerned things have been sidelined.

In my very unscientific watching of the medicine subreddits and forums I have seen no sign of softening of the position of physicians. The few descanting voices have always been there, drowned out by the quorum and 95% majority believing its all illfuencers.

I will never touch a psychology study done by the NHS, not ever. They can not and should not be trusted.

I have one issue its just got 50 symptoms, they definitely can't cope with that! I tried booking "I think we need an hour, its a complex disease", "sorry we have no double slots available". Just zero provision to even accept such a thing is possible.

If its catching its low likelihood and very slow to the point where no one has conclusively shown it to be the case. But I don't think solid evidence against it being contagious has been determined but neither has solid evidence for contagion been shown either. I haven't papers either way to...

ME/CFS(probably) still undiagnosed for 10 years and 2 months, Long hauler since March 2020, caught Covid (probably) in February 2020. Only current standing diagnosis is Migraines and Depression. I am not depressed but I do have constant daily headaches unless I treat myself for ATP energy...

The correct answer at this point is not just NO, the consideration of it as medicine at all has completely destroyed the entire medical profession and its bringing down the entire system.

One thing Doctors with ME could positively do is diagnose patients and provide themselves as expert witnesses against the DWP and other Doctors for legal challenges for bad diagnoses. That is something as an organisation they are uniquely positioned to provide and might kickstart the legal...

I will never be able to explain the mind of doctors, all I have is "systemic prejudice" as an explanation. My GP is my local clinic unfortunately now so I don't have the option to sidestep them like I did before I moved.

I can't even get a response from my GP on the matter, they are ghosting me as I request it. Can't have it even though I want it.

It wasn't well tolerated in ME/CFS patients a lot of people had side effects. The biggest problem is the trial length of 12 weeks and potentially dosage. One of the problems is the effect waned over a few months and no amount of jostling the drug dose seemed to help. Ignoring that problem...

This is about the best thing I have seen from them so far. Its a fairly reasonable presentation with some reasonable examples and its written well. Where the entire thing is lacking is in a basic understanding of how a patient can get an appropriate diagnostic and legal representation when it...

I quite like they led with a 10 year old kid. After so much "kids don't get Covid, they don't get Long Covid" this just exposes the lie right up front alongside some enormous numbers for those already suffering from this condition. 1 in 14 children are being ruined by this thing that is very...

Please respect the do not participate link here but the doctor with a humbling journey with long hauling story has hit reddits medicine sub and the discussion has gone as expected, lost of dismissal of long conditions and saying there is no knowledge on long covid or even if it exists again by...

The entire UK government messaging was get your vaccine to protect others, we were shielding and avoiding spread again to protect our most vulnerable. If it doesn't even reduce transmission, which I think in hindsight it obviously doesn't, then it doesn't fullfill the goal. I remember the...

Given the rest of the abstract this is going to be about the environment impacting the adolescents psychological health and resulting in CFS. There is no chance that assessment and management ends up NICE 2021 compliant since its thrown in with mental illnesses. I am really interested to read...

I think we will see a lot of the suicides disappear if we fund living with the condition properly and medicine accepts they have it and goes about doing all it can to understand it and treat the symptoms. That basic acknowledgement and a route to living will stop a lot of the suicides that...

I don't think I can be very definitive here. Sometimes laying down helps, I can feel I need to lay down, I do so for an hour or two and I feel better. But paradoxically I wake up feeling dreadful and often with pins and needles in my hands and arms and it can take me a while to get going. On a...

Oh hell no that is a terrible idea given the state of medicine! There are far too many debilitating diseases that medicine is busy denying exist for that to remotely work.