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With these numbers Pace 2.0 for Long Covid is probably going to have to use a similar strategy but with a bigger spread, 45 counts as recovered and take in everyone under 90.

If any software developer had failed to look into a bug in the same way doctors have looked into my medical condition I would have fired them, I have never seen a programming team have standards remotely as low for scientific inquiry as I have seen routinely in medicine, its not even a...

This precisely the short focused trials on recommended supplements we need. Also using a control is critical because of that last point, seeing an improvement on both sides of the trial throughout. I expected a lot of the long hauler trials on supplements will end up this way and a bunch of the...

Post moved from the Long Covid in the media thread. I guess I have another place to look for horrific prejudice, yay sounds like an afternoon.

Same is true for ME/CFS for most pension schemes, has been for a long time. A union friend of mine has been dealing with one such person this past week. They just had their income protection pulled after a (clearly wrong) doctor declared them fit to work and now they are trying to maybe...

Can't help but think the reduced distress might be because finally someone accepted they were ill. There are likely many ME/CFS patients that have trauma caused by bad medical interactions at this point so having a neutral one is a good day. As I have been saying to Long haulers recently when...

It's the estimate for how many people have a diagnosis for ME in the UK out of the estimated sufferers. I raised a comment about a while back on the thread, it is the current estimate for primary sub selection for that study and actually its subselecting to about 2/3 of that in practice with...

20-25% is better than the estimates for DecodeME which is only looking at a 10% subset with existing diagnosis. There should be quite a lot that fit this criteria especially if they are only looking for hundreds to thousands although it depends in how big an area and with what level of...

I wonder if they have Ron Davis' 37 Tryptophan trap drugs list. If they do this might be one of the ways we find out about one/some of them if the list isn't a who's who of debunking or rubber stamping drugs believed to work or doing small trials to validate Long Covid larger trial findings.

The OMF is doing a triple donation drive, has a list of research it intends to fund next year but also seems to be trying to get funding to run a set of small clinical treatment trials using existing drugs. https://www.omf.ngo/do-you-want-an-effective-treatment/

Yes more research is required but if governments haven't committed funds now I can't imagine that changing much in the coming years. They are all too busy calling Covid over.

Not even 60k have received a diagnosis of long covid so it's not a surprise to find few in pip. As a community long haulers are being told they will recover so technically PIP requires the expectation of long term illness so many won't be applying as a result. These figures in general show how...

The input from 10 different "experts" is really present in this one. Recognition of biological underpinnings of ME/CFS as post viral, but also plenty of BPS undertones for social and Psychology impacts. Recognition of PEM as a problem with heavy exercise, screening for it but also checking...

For such an invasive test 80 patients is a pretty good size for this type of study. Alas I feel that 30% of patients with confirmed Covid 19 in the removed material leads more evidence to viral persistence but its not the 80%-90%+ we would hope for to identify cause. Since the removals didn't...

I don't see any comments at all it shows 0 and clicking on it also shows no comments. Clear your cookies/login and I suspect you may find they have misled you.

The chinese had a lot of experience with SARS and a whole bunch of people have ME/CFS from that outbreak. I think its likely that they recognised very early that Covid-19 SARS 2 was likely going to have a similar effect and paid close attention to the early reports in 2020 like with the Irish...

And /r/medicine has now picked up on the paper.

Do /r/juniordoctorsuk next! Alas too few posts for a similar analysis to be done, but its far nastier when they do go on rants about particular diseases.

I have all the pieces still attached. I had a grumble in my appendix as a teenager but it passed.

I get the feeling 144 million is a bit of an under estimate. Prevalence is varying enormously in the world from 1% to nearly 10% and that just can not be the case. I think the historical societal lense of prejudice is impacting the estimate, even the ONS had significant problems with this in its...