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Looks like a nice relatively simple diagnostic test. I really don't care if it shows up in other diseases, it just shows there is a common thread to do with fatigue or autoimmunity, its the symptoms combined with the objective test that identifies any disease anyway. I hope they get this one to...

Dr Resia Pretorius has had the protocol including anti clotting and anti platelet since the beginning when they analysed the make up of the clots (https://europepmc.org/article/PPR/PPR436609). Its a bit surprising I think to not see some benefit from half this protocol on its own however.

Long Covid papers have been pretty much outpacing ME/CFS at a rate of 4:1 all year. ME/CFS hasn't received any more funding but Long Covid sure has. Some of the big famous researchers are now working in Long Covid too so I think its fair to say some of the small number of researchers who...

There is a brain bank in the UK and with the NIH in the USA, there just isn't any researchers interested in bodies/brains from ME/CFS patients and presumably not in Long Covid either.

In the USA they seem to be accepting patients more than in the UK and I suspect part of the reason is just their goals are aligned. Patients want proper healthcare and if they aren't provided it they wont be paying. But in the NHS there is no incentative or consequences for complete failure. No...

That is some grade A gaslighting of Long Covid patients as Psychosomatic! Medicine is really struggling with the concept of illness.

Shame its paywalled I am quite interested in whether this is a general question on stigma associated with everyone or just from doctors. I guess the medical field doesn't really want to find out that the stigma is mostly about how they treat patients and stigma in the wider population from...

BioGaia is the name of the company that does a human variant of this bacteria. Its quite expensive so if you want to try introducing it I suggest making yoghurt from it, it processes lactose and 42C is about optimal for this bacteria. Its quite an interesting bacteria in general because it was...

I found the channel, ZHealthPerformance they finally posted a new video! This is what I mean about range of motion (circling the knee) training. Its a really interesting technique, I have no idea if they have any better science underpinning the neurology aspect (doubtful) but the technique of...

In a fantasy world where Ron Davis' Itoconate drugs are genuinely the cure and we know about it in the next months my first thought is where I will likely buy this from abroad. My instinct would not be to go to my GP, they will take years to decades to accept the reality of the treatment by...

Who wants to take bets about whether this changes things? Is it just an information issue or something else. Perhaps I should see if my GP is now not broken.

Oh the irony from the GMC given how its been defending abuse by GPs about complaints around ME/CFS for decades. Its not about what they say its what they do, the GMC is part of the problem.

This reminds me of something I got from a private physio (after I saw a private knee surgeon who suggested rehab before doing the suggested surgery) for an injury I have had to my left knee from kickboxing as a teenager. The initial physio was all about switching muscles on and off and having...

Charles Shepards outline, it was recorded so the video's should go up soon.

A lot of anger in the Remember meeting around the exclusions from DecodeME. I understand their annoyance as an otherwise excluded person. This seems to be everywhere I am finding people talk about the trial, anger seems to be continuing and the FAQ hasn't resolved it given many of these people...

Its also a hack around the human psychology that repeatedly seeing the same thing said over and over, even with poor evidence, ultimately most people take it as true just due to the repetition. So they don't need to produce good high quality papers they just need to keep on publishing garbage...

When these GPs are finally "retrained" they ought to be forced to go back through all the patients they fobbed off and contact them, admit they messed up and then refer them. It wont happen, there is zero chance you can get a GP to admit fault but its what a functioning healthcare system would...

I have been really concerned about what the RECOVER programme has been funding for a while. Initially they were funding absolutely nothing but data collection, the entire thing was just the biggest symptom and fluids collection study in the entire world of all time, a true master use of 500...

I figured Chalder would be hopping off BPS as it got ridiculed and onto FND as it rose.

This just isn't true, what patients are seeing on the day to day is anxiety diagnosis. I get it the BBC has to hide the medical system has completely collapsed and increasingly have to lie about it but at some point everyone is going to realise they lied. As the lords debate showed the...