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Whilst it is better than nothing it is still pretty meaningless. Nobody is going back and listening to old episodes, they should have done the required investigative journalism before hand instead of almost a year later after several complaints.

It appears the Guardian is more interested in being seen as pro-science than actually being pro science. Garbage newspaper.

@ukxmrv With that description of silly season, it is silly season year round and has been for some time.

@large donner Yeah thats right. Problem is, somewhat understandably, the average person will look at an article they don't know much about and assume it is right because it's in a mainstream paper that they like. It is only after you see a paper be consistently wrong about several things that...

@Michiel Tack I think the trap explanation for differences in severity and symptomatology is the number and type of cells trapped. ME only effects cognition would be cell type X, severe would be tons of cells, mild a few, etc.

It helps me with my post meal symptoms that come on from carbs so pretty good. Those symptoms where pretty brutal and I suspect it was nothing to do with gut problems or diabetes but problems with using glucose for energy. One of the reasons I believe this is because I can significantly...

Earlier in this thread it was said that capillary diameters cannot be increased so best to focus on improving RBC deformability. I am just wandering, could increased vasodialation as seen in POTS be some kind of attempt to increase capillary diameter or is this just not possible?

It's kind of like someone punching you in the arm and saying it only hurts because your focusing on it excessively. I have brought up pounding heart (different to racing heart) to many doctors and have consistently got the hyper vigilance BS. I argue this diagnosis with all of them but it seems...

I agree. I am being "treated" by my POTS doctors for deconditioning and hyper-vigilance despite these diagnoses making no sense and I have made this clear to them. They acknowledge my heart rate increasing is a physical phenomena but my heart pounding really hard is just hyper-vigilance. I know...

Hey @ScottTriGuy I like the idea, do you have any links for non itunes versions?

"ME/CFS patients have difficulties controlling viral infections and many develop non-Hodgkin’s lymphoma." Does it say in the full text how many develop lymphoma?

Thanks @Andy I have set everything up, will see if it works tomorrow.

Where do these emails come from? Is it a computer algorithm that picks up new papers on PubMed etc?

Very interesting. Ties the PDH stuff to the high levels of Cardiolipin antibodies.

Could you tell me more on the Tyrosine gene/trap?

That's fair enough, I shouldn't have said that. I don't know what dog piling is either but I think it means everyone piling up on one person. What I should have said is that the majority of posts in my feed in all CCI related threads are critical of JenB whereas the posts that are positive or...

It seems like the overwhelming majority of posts that show up in my feed are critical of how @JenB has handled this, feels like dog piling. I will try to balance this out to say I think she has dealt with this very well. She has only recommended that people get MRIs if they fit CCI/etc...

I have no problem with people saying that CCI surgery / traction can be dangerous, it may only affect a small portion of people, there recovery might have some unrelated cause, etc. In fact I encourage it, that should be what a forum is for. I also agree with @Mattie that I think @JenB and...

I don't think Lyme and CCI is necessarily any more difficult to link than CFS and CCI. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3751012/ That study shows Lyme damages collagen. Pathogens associated with CFS also may damage collagen.

@Hip I think we have talked about this before but within weeks of getting ill with this my gums receded massively. I remember thinking all my teeth where going to fall out if it continued but it leveled off and remained roughly the same since. Just gona throw out this as well. My lower back and...