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  1. EspeMor

    Carol Monaghan granted a Backbench debate (UK Parliament) Thursday 24th January 2019

    Thank you all for the feedback, it has been noted and we will try to fix before the debate, but as you can imagine, there are quite a lot of things going on. The briefing we have produced, as you can see, it's essentially tailored made for this motion and so we didn't have much time to publish...
  2. EspeMor

    Carol Monaghan granted a Backbench debate (UK Parliament) Thursday 24th January 2019

    Working on it and it will be published by tomorrow at the latest! Not a lot of time but plenty still! ;)
  3. EspeMor

    Forward-ME Group Minutes – 21st November 2018

    The survey has been launched now. You can take it here: https://brookeshls.co1.qualtrics.com/jfe/form/SV_cwGfVEpqF7CmdTL And read more about it here: https://www.meaction.net/2019/01/10/tell-nice-your-experience-of-cbt-get-take-the-survey-now/
  4. EspeMor

    Forward-ME Group Minutes – 21st November 2018

    We certainly will, as well as the rest of the charities :)
  5. EspeMor

    Carol Monaghan has applied for a debate in UK House of Commons main chamber

    just to add: If you have any questions or suggestions, do email me! -> espe@meaction.net I AM HAPPY to chat and exchange private emails with you all! Night! Espe
  6. EspeMor

    Carol Monaghan has applied for a debate in UK House of Commons main chamber

    Dear Barry and friends, This was posted on social media, via Facebook and Twitter, by both charities as it was communicated at the time, in GOOD FAITH! NO ill faith was intended as you can understand, on the contrary! Business might be taking longer than usual for parliamentary things at...
  7. EspeMor

    Reply from Nice

    This not the adequate response to 10 emails or 2,000. Each email needs careful attention and handling. YES, there's a template, but people have been modifying that, rightly so and that's the aim! To send a BCC email to most people with that response is just... I have no words.
  8. EspeMor

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    #MEAction is currently working flat out on how to address this, from all possible angles. So we are here ;)
  9. EspeMor

    Backbench Business Committee for next Parliament debate

    Excellent news! The meeting yesterday was really productive and Carol was in superb form. Crossing fingers and toes!
  10. EspeMor

    [UK] #MEAction, Meet with your MP about ME – Our Toolkit shows you how!

    Also just to let you guys know that we are working on new online tools to help you take action with us and MPs without having to meet in person or the phone. This is the first of hopefully many other toolkits and online tools to follow! :)
  11. EspeMor

    [UK] #MEAction, Meet with your MP about ME – Our Toolkit shows you how!

    Thanks so much! Yeah, we should look into this and see how we might be able to incorporate something like this :)
  12. EspeMor

    [UK] #MEAction, Meet with your MP about ME – Our Toolkit shows you how!

    Thanks for the feedback Sasha, much appreciated. Working on this to see what we can put together :)
  13. EspeMor

    [UK] #MEAction, Meet with your MP about ME – Our Toolkit shows you how!

    I understand Sasha. Have the call to actions to urge MPs to attend debates been more helpful for you? I'm just trying to figure out the best way to provide you with tools so that you can connect :) I know that we might use similar tools (e.g. social media) but hopefully, we will have other tools...
  14. EspeMor

    [UK] #MEAction, Meet with your MP about ME – Our Toolkit shows you how!

    Hi! In this case, some people opt for a group meeting. Often they might arrange it via #MEAction local groups on FB so others can convey your message and bring your letter and any other documents. I understand that this might not be possible in your case though. Keeping that in mind, I'd...
  15. EspeMor

    Donate to the £55k fundraiser for a UK #MEAction organiser!

    Thanks for the tip Andy, will do! :)
  16. EspeMor

    Donate to the £55k fundraiser for a UK #MEAction organiser!

    Thanks Andy, it's great to be here!! :)
  17. EspeMor

    Donate to the £55k fundraiser for a UK #MEAction organiser!

    Hi all! It's Espe here! It's a pleasure to meet you all and looking forward to making a huge difference in the community. THANK YOU for your support and please do keep in touch! :thumbup: PS: espe@meaction.net :)
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