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Yes, i also recognise this. This is me most of the time these days. I cry in children's animated films when something nice happens to the character. This other uncontrollable outbursts is on top of that.

Thanks for the suggestion, sadly MCAS stops me from trying anything new. Sorry to hear this, i didnt know this was common in PWME. Mine emotions are quite the opposite.

Haha - i thought you WERE a pirate already! Hope the dentist goes OK.

Thank you, and yes it is horrible.

i always saw emotional lability more as a seesawing of emotions, being perhaps overly emotional and crying easily etc. This is more a severe uncontrollable hysterical emotion out of all proportion to the precipitating event,

two years ago i had my first episode of uncontrollable laughing. It was incredibly embarrassing. I was playing a game with grown up children and found the thing i had to say disproportionately funny and couldn't stop laughing. I had to leave the room and was gasping for breath. It was like...

I havent watched it yet, but your thoughts are interesting. I think it certainly is more complex. In my case i have only ever had an atypical ANA three times, am not unaffected in between, in fact each episode has taken at least 6 months to recover from. Until this summer my only big reacions...

I didnt know that about his dyslexia, so feel a bit wrong having pointed it out now.

Good he has written this, but it is full of typos and errors, which is a shame. Needs a good proofread, hopefully the original letter was not as error ridden.

Halfway through...this just gets better and better. I want to keep throwing up quotes here, but instead, just go and read it!

What a great guy!

Im sorry to hear that - sounds like we are similar. Would be interesting to have a chat by PM about our illness and swap notes.

Do you have multiple family members affected? I do too. My birth mother (even better for research as i didnt grow up with her) has M.E, a maternal cousin i have never met, one of my 4 children has been ill and another one shows tendencies.

Sorry, had a little chuckle at this one! Im really struggling to eat, dont tolerate a lot of meds, antihistamines not even touching the itching anymore. No help from NHS at all. Steroids no tolerated. Really ill with lung inflammation during flu few weeks ago and looked at askance by the...

There is no definitive test for MCAS - some have it with no increased levels. Testing is not reliable unless the lab really knows what they are doing with them. I would highly recommend a visit to one of the few private MCAS specialists in the UK. A full list can be found at Mast cell activation...

This is something i have thought about a lot in the past year or so. I joined a facebook group for PW Lyme, many had an M.E dx as well or instead of. The focus on getting well and seeking 'treatment' was so great that i felt i had to push myself to join in with this also. On some level i bought...

Just watched the first one - thanks! I despair at how to get the correct testing and treatment in the UK. My mast cell keeps getting worse and no idea what to do/how to treat it all. So frustrated with having to chase down individual people for each piece of the puzzle who then doesnt connect...

The test result i saw was from my records. No titer noted, just negative.

Yes!! M.E may or may not be immunological, but MCAS definitely is. M.E may not be autoimmune but POTS often is. I now have a host of co morbid dx that each consultant looks at through the lens of just that process, as if its not all being driven or affected by something else.

Of course for those of us with MCAS and M.E, it could be true that we have an immunological dysfunction. Primary MCAS is an immunological disease, secondary MCAS is caused by an assault of some kind on the immune system such as bacterial infections or viruses. In some people it may be genetic in...