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  1. rvallee

    EDS, hypermobility, and the link, if any, to ME/CFS

    There is plenty of evidence for this in patient reports. No scientific evidence, though, because medicine is unable to do this competently. But anyone, like me, who has spent significant time reading Long Covid testimonies can see this pattern easily. I have read thousands by now, dozens every...
  2. rvallee

    Long Covid in the media and social media 2022

    So the UKHSA asked a prominent pandemic, and LC, minimizer to talk about Long Covid in children, who is also the clinical lead for Covid in children. Cool. Cool cool cool. There's also a huge infectious disease conference happening soon that invited 2 prominent LC deniers and general pandemic...
  3. rvallee

    Long Covid in the media and social media 2022

    I have a few ideas...
  4. rvallee

    Long Covid in the media and social media 2022

    The damning testimony NHS staff have submitted to the Covid inquiry | ITV News
  5. rvallee

    Analysis of malingered psychological symptoms in a clinical sample for early detection in initial interviews, 2022, Barbosa-Torres et al

    Trying to make sense of this nonsense, there are so many bizarre claims and blatant assertions of ignorance, but what this appears to me is to build up BS evidence that it's possible to check for simulated symptoms to use in a court setting and reject claims. Which is in a way bizarre since the...
  6. rvallee

    UK Government rejects Grenfell Inquiry recommendations on evacuation of buildings as ‘not proportionate’

    Shades of "healthy people don't want to wear masks so disabled people will have to be ostracized because the healthy people want to paaaartay".
  7. rvallee

    A Novel Digital Self-management Intervention for Symptoms of Fatigue, Pain, and Urgency in Inflammatory Bowel Disease, 2022, Moss-Morris et al

    "Novel". "Theory". The "theory", somehow "novel", is the exact same as usual: Their "theory", the same as usual, has the "potential" to do something. How compelling. Einstein had nothing on those geniuses. The joke is that this is an actual field of medicine that has immense power over a...
  8. rvallee

    Trajectory of long covid symptoms after covid-19 vaccination: community based cohort study, 2022, Ayoubkhani et al

    One thing that bothers me, and this study is no exception, is that the vaccines' efficacy clearly attenuate over the course of a few months. But with the regular vaccine schedule, until recently, all studies were on recently vaccinated people, simply because that's how the timeline happened. So...
  9. rvallee

    Long Covid in the media and social media 2022

    I'm pretty sure the 75% is an undercount. I still see a huge trend in LC forums where most have no formal diagnosis, their PCP simply refuse to use it. They'll have generic mental labels like depression or anxiety. So at best it's a study of physicians' use of that diagnostic code, whether it's...
  10. rvallee

    Prevalence and correlates of alexithymia in older persons with medically (un)explained physical symptoms, 2022, Bos et al

    What would those be? There is nothing known about the biology of symptoms, all there is is association: this symptom is associated with this diagnosis or disease process. That's not an explanation. It's completely arbitrary, especially since it depends on perception of the disease, so that...
  11. rvallee

    News from Aotearoa/New Zealand and the Pacific Islands

    A holiday from what? From being disabled? From a dystopian nightmare that destroyed my life and all quality to it?
  12. rvallee

    Aromatherapy blend of thyme, orange, clove bud, and frankincense boosts energy levels in post-COVID-19 female patients..., Hawkins et al, 2022

    This tells us everything we need to know about how useless "fatigue scores" are. It's like using a broken thermometer and expecting to do chemistry research with it anyway. Makes zero sense for a group of professionals to pretend that fuzzy maths applied on guesstimates about a concept made...
  13. rvallee

    Unexplained post-acute infection syndromes, 2021, Choutka, Iwasaki, Hornig et al

    Full title: Unexplained post-acute infection syndromes Authors: Jan Choutka, Viraj Jansari, Mady Hornig & Akiko Iwasaki Published: Nature, 18 May 2022 Abstract SARS-CoV-2 is not unique in its ability to cause post-acute sequelae; certain acute infections have long been associated with an...
  14. rvallee

    UK - NHS England online tool and clinics for long Covid.

    Many Long Covid clinics are just as awful as the "fatigue" clinics. They're truly making their parents proud, achieve the same level of being offensively wrong.
  15. rvallee

    Open Medicine Foundation (OMF)

    Basically a way to turn the symptoms list patients bring into a format that will be accepted, rather than glanced then ignored? Interesting. Could be very useful. Obviously one of the main obstacles to achieving any progress is that over 90% of the illness is simply ignored, information thrown...
  16. rvallee

    Neuropsychiatry’s Role in the Postacute Sequelae of COVID-19: Report From the American Neuropsychiatric Association Committee on Research, 2022,Baslet

    Ah, well, nevertheless. It sure would have been nice to have those by now. But I guess pretending those exist should keep working for a while, at least as long as no one expects anything out of this specialty. How could we possibly pass on the opportunity of using "have you tried not thinking...
  17. rvallee

    UK: All Party Parliamentary Group on Coronavirus, March 2022 onwards

    That horse has stormed out of the barn a loooooong time ago. It's weird that people speak of things that have been happening for years as if they could be avoided in the future. Jaime Seltzer put it marvelously today, something like you can't predict the future if you're still negotiating with...
  18. rvallee

    Long Covid in the media and social media 2022

    There is a US senate hearing today where Fauci was asked questions about LC, some mentions of how the $1.15B NIH program is going (not at all encouraging, they appear to be wasting the whole thing by relying on health records):
  19. rvallee

    Assessment and Management of Long COVID, 2022, Rivas-Vazquez et al

    Wow, even by the usual standards, this is awful. Zero clue. I got curious WTH could this CSBS be and wow is this just terrible: The most urgent and immediate focus has been placed on identifying and developing effective therapeutic interventions during the acute phase of the illness; however...
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