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  1. rvallee

    Brain microstructural changes and fatigue after COVID-19, 2022, Diógenes Diego de Carvalho Bispo et al

    So the whole study is pretty much useless. As demonstrated by there being no difference in performance despite the patients having vastly lower performance. An entire study that could have been somewhat useful made useless by poor upstream choices. Brilliant. The lack of before and after...
  2. rvallee

    The Validation Crisis in Psychology, Schimmack, 2021

    If you're not measuring, you're not doing science. Ratings aren't measurements, measuring something has a specific meaning in science and ratings aren't it. Psychology almost exclusively does ratings, through questionnaires, which makes them of very limited scientific value. As a choice. A...
  3. rvallee

    Long Covid in the media and social media 2022

    Interesting survey on vaccination outcomes in Long Covid (how vaccines affected pwLC). There have been a few already and it's consistent with them overall, but far more in-depth in terms of details, continuing the trend of amateur research (though from an expert) being far better than almost all...
  4. rvallee

    Long Covid in the media and social media 2022

    Generally speaking, I am seeing less interest and reporting on LC but also more openness to working it all out together. Even though evidence is confirming how it's actually worse. Healthcare truly and mostly is political in the end. It's not a discipline where science can simply overrule debate...
  5. rvallee

    News from Australia

    I think it was just a few weeks ago that IIRC the health minister, maybe?, said that they're not really seeing any Long Covid in Australia, not a concern to them, there's nothing to do here. Or maybe the president of the medical association? And we're really supposed to have our lives in the...
  6. rvallee

    Mindfulness Meditation Interventions for Long COVID: Biobehavioral Gene Expression and Neuroimmune Functioning (2022) Porter & Jason

    And yet, this was always the natural course this ideology would take, to pretend that it is. Anyone up for some CBT: Cognitive Buddhism Therapy? It's not as if there's any actual difference, about as much as mispronouncing the words while taking the Book of the dead. Mind. Body. Spirit. Well...
  7. rvallee

    Pain researchers lose three papers after Cochrane group questioned data, Retraction Watch

    Amateurs. They're supposed to call their critics dangerous activists and reject the premise that they did anything wrong while working to get them fired behind the scenes. At least that's the standard now.
  8. rvallee

    UK - Long Covid guide for community nurses

    For severe patients, sure. They should also be followed by a GP, though. Otherwise it makes little sense. But the needs of severe patients are much more than nurses can do unless they are assigned 1:1 full time, which makes no sense and won't happen. It does nothing for the vast majority of...
  9. rvallee

    Discovering strengths in patients with medically unexplained symptoms – a focus group study with general practitioners 2022 Jøssang et al

    If you look at the quotes, they fall so far short of flattery it's not even funny. They sound more like things to say to someone in a suicide crisis, trying to find reasons why it's worth living, and only coming with generic platitudes of no importance that could be said of anyone. And they are...
  10. rvallee

    UK - Long Covid guide for community nurses

    That makes zero economic sense. Or any sense at all, since they would make no difference. What would the nurses even do? Be around? For what? I don't understand how people can be willing to do useless things when they already can't keep up with all the useful things that are needed. This is...
  11. rvallee

    Depression in paediatric chronic fatigue syndrome 2013 Bould, Crawley et al

    Another optional requirement. This is obviously not a service evaluation. Not quite research either but it loosely meets the technical definition of needing this requirement. Obviously no service was evaluated here, this is extremely insulting to our intelligence. They obviously know this and...
  12. rvallee

    Discovering strengths in patients with medically unexplained symptoms – a focus group study with general practitioners 2022 Jøssang et al

    Imagine telling car mechanics that when they can't figure out how to fix a car, they spend time with the client going over the things that work or isn't broken in the car. And you can't even imagine that because it's too silly. Also, this: Is just word salad. This is publish-or-perish...
  13. rvallee

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    All familiar, all known issues before, all still ignored. The same ugly discrimination and disregard for patients.
  14. rvallee

    Mindfulness Meditation Interventions for Long COVID: Biobehavioral Gene Expression and Neuroimmune Functioning (2022) Porter & Jason

    Uh, yeah, because there's nothing professional grade. That doesn't make it a good thing. It's the same reason people used to do weird stuff back then, that didn't make them any good. We really shouldn't be dealing with nonsense like this. As for meditation "enhancing immunity", we are in...
  15. rvallee

    Is there an association between insecure attachment & symptom severity in FSDs, & what is the role of mentalized affectivity, 2022, Airey

    Yikes. The pre-selection effect of this much woo is just as strong as a study of astrology that essentially requires belief in astrology. This is patient selection, most pwME wouldn't be found dead anywhere near this quackery.
  16. rvallee

    Post-Traumatic Stress Disorder and Chronic Pain Conditions in Men: A Twin Study, 2020, Gasperi et al

    Sounds more like chronic illnesses and their consequences are commonly labeled as PTSD. Which is consistent with how things like MUS are operationalized. It's a common practice, so it would lead to massive over-labeling like this. We find the exact same thing with depression, anxiety and various...
  17. rvallee

    The effectiveness of activity pacing interventions for people with CFS: a systematic review and meta-analysis 2022 Casson, Lloyd et al

    It's actually hard to point out all the things that are wrong because there are just so many. Starting with the fact that pacing is not, and cannot be used as, an intervention or a treatment. Especially a distortion of pacing that makes it GET-by-lying, showing Lloyd still doesn't have a clue...
  18. rvallee

    Long Covid in the media and social media 2022

    First of all, that's not a "sense" or a "feeling", it's the literal argument. ME is not taken seriously at all, on the basis of a BS model. This is a simple fact. If it makes physicians sad because it makes them look bad, the solution to this is entirely in their hands, we cannot help them deal...
  19. rvallee

    Placebo effect discussion thread

    How the hell does a profession that's supposed to be based on science believes in this crap? When it's described honestly it's as delusional as the humors or any of the obsolete stuff ever was. Turn the argument: "the patient heals anyway" and apply it to literally every pseudoscience out there...
  20. rvallee

    New York Magazine - Intelligencer: Has Long Covid Always Existed, by Jeff Wise, November 2022

    Obviously, it's 100% intentional. The time to mince words has ended long ago. This negligence will continue until it is made to stop, it will not end on its own. Even with LC too many have staked everything on doing the wrong thing yet again, it's too embarrassing to admit.
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