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That makes no sense whatsoever. WTH? But it really confirms my view that the biopsychosocial ideology can genuinely, and in full, be reduced to the love-and-fear pseudo-cult in Donnie Darko, or at least this makes up 90% of it, you can just swap some words and it's basically that...

Alzheimer's research has mostly focused on amyloid for the last several decades. I really hope this means they have a leg up on this and can take it from here. Even if it's to debunk this. Surely decades and billions in research can be somewhat leveraged here without having to redo all the...

Twitter thread from the main author with summary of findings for easier reading:

Merged thread Full title: Mild respiratory COVID can cause multi-lineage neural cell and myelin dysregulation Authors: 17 authors including Avindra Nath, Akiko Iwasaki, David Putrino Published: June 12, 2022 Journal: Cell Open access: https://www.cell.com/cell/fulltext/S0092-8674(22)00713-9...

Sure. But it's common. It definitely shouldn't be left out, especially not on a discussion over this issue. I frankly don't understand why it's so often left out of definitions, but that's my bias as someone experiencing it. It's just silly how everything is made out out of "a primary symptom...

Despite the confidently wrong claims of some ideologues, not knowing about Long Covid is not protection against. Obviously, what century is this even that it has to be said? Several comments from pwME and pwLC but many are from people who clearly have not heard of LC and experienced the same...

I am annoyed by this framing of "disaster is looming". It whitewashes the last 2 years (and the many decades before) and minimizes the current level, only making it a real problem if it becomes so large that everyone knows someone disabled permanently, or experiences it themselves. What...

That's the most common behavior, most people downplay illness rather than exaggerate it. Which probably makes the whole MUS/FND thing so fascinating to those people, how the norm is for people to downplay health concerns whereas there's "us" who do the opposite, so unnatural. Somehow they...

Amazing how out of two words it's so common to completely overlook what they mean. In a discussion of pain in myalgic encephalomyelitis, compared to FM, they don't even list pain in the ME symptoms because they don't think about it. Myalgic encephalomyelitis Myalgic encephalomyelitis Myalgic...

Oh, just that? The whole thing? Easy peasy. Just "do the needful", I guess. Reminds me of the classic story of a computer science professor who tasked a PhD student to "solve vision" as a computer science problem over the summer. Because understanding the problem is the first step of solving...

That was one of my most amus/confus-ing moment in my medical history, trying to explain to sleep clinic specialists that I am not sleepy, nor tired, not somnolent, that fatigue means something else entirely. Much confusion ensued. I don't think I got across. It was pretty much a waste of time...

There have been a few articles published on the opacity and dysfunction of the NIH initiative, where secrecy is the norm and that's never a good sign. This is what oversight is all about and why it needs to be universal, no one can self-regulate themselves, no organization or group of people can...

It is BOOM time in the business of rehabilitation. It's really all about the business, an easy stream of no effort work where no one has to think beyond executing a script, there is no accountability or oversight and results don't even matter. I see again just how thoroughly silent the vast...

Good to hear. The PSP priorities are a very good hammer to use here whenever some BPS gets talked about: literally not even on the list of priorities, so move on or get out. There are so many angles and arguments that can be made, always steering things in the familiar direction of systemic...

I skimmed the paper and frankly can't find any substance at all, certainly no lessons there. They're describing what they're doing, that's all there is. Looks like a paper published for the sake of publishing papers, one that doesn't show any professional-level progress, merely a description of...

Incredible how just the poor language used by professionals is causing so much confusion and failure. This is just like the famous failure of a Mars lander that crashed because one team used metric and another used imperial, except it's routine, it happens every day, it's considered normal and...

Yup. Can't change away from disaster without doing a proper audit on it. If no one is willing to criticize that 1) there was massive systemic failure that 2) lead to disastrous outcomes and 3) there are people and organizations directly responsible for this who need to be held accountable...

Maybe Virgos will have a good day. Maybe not. "Ooooh that's so Virgos! So accurate and truuuuuuuuuuuue." You can basically swap neurotic and this is basically 90% of FND/MUS. It "may" be true. Or not. No one can tell, but they'll say it anyway.

The difference in language between what they report in papers and what they tell patients is basically the whole con. The very best they can admit to is that it "may" "help" "some", but nothing substantial, nothing that can be measured. But the public message is that this is basically 100%...

Not sure who is "we".