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It worked perfectly before the Internet, almost no one had access to that information. And that's why they strongly advise their patients to avoid patient forums. Basically they don't care either way, it works and we can't do anything about it because it's all decided in secret behind closed...

The beauty of this scam, is that the expert witnesses who would be called to evaluate the claims are... *drum roll*... them! Ain't that system a beaut? It's the most perfect scam ever created.

I'll add that I can relate. I used to write like that, thought it made for better communication to just pack as much meaning as possible in as few words as possible. This is a similar mistake that inexperienced designers do as well, pack as many graphics and colors and stuff as possible so that...

They literally don't want any feedback, don't want to hear from patients, don't want to know anything that doesn't conform with what they're taught. After getting some criticism, from either form or substance, they simply locked comments. Ivory tower mutual admiration societies limited only to...

Given the current movement to move away from objective outcomes entirely and lower standards to deep underground, while insisting it is better science because they know better, it looks like the best they can do is do even less science while saying they're doing more science than ever. You...

Also: CBT & GET work, according to the people who think LP is great. Or "psychological-led rehabilitation", if they feel very generic. That's even how they know it's psychological, even though it's well-known that inferring cause from pragmatic trials is invalid. It's the quantum treatments...

Comparing further to software engineering, whenever we are told to "read the paper", or that "trials show this works" about something that clearly doesn't actually work, it's exactly the equivalent of responding to a bug report on my own work with "it works on my machine", or some hubristic...

It's actually far worse than this, because there are many studies that are the opposite of one another, and they're all positive. So a study that finds a positive association with something is positive, and so are studies that seek out the opposite. Everything gets a shiny gold star! Almost as...

That would be quite surprising to hear from the vast majority of long haulers who report exactly the opposite, that they are completely let down and those "pathways" are an insult. Although in a sense what they are reporting is exactly this pathway, you don't even need to try, just say you...

Patients and parents of sick kids are doing press conferences to raise awareness of LC while medical authorities are doing everything they can to suppress and minimize the issue. They are begging for help while most twitter physicians are laughing it off as a thing of no concern. So much for...

It failed. And they think it succeeded anyway, telling themselves it would have been worse otherwise, when given what we know, it's actually more likely they made all outcomes worse for those who never recovered, and had no more real impacts to those who did than juggling healing crystals while...

Looks like it's standard to inflate numbers wherever psychology creeps into medicine. Or I did the calculations wrong, but the ONS says the 2006 UK GDP was £1.8T, so £12B would be 0.6% of GDP. Of course no one uses "total national income" like this. GDP figures will be used. Sometimes GNP, but...

Ah, well that's understandable. Shows how flimsy it all is to depend on political cycles to change anything. You can get support and the next week have to start all over again. Not much happening that I can see. He talks, but doesn't walk. Either there are forces within medicine that simply...

So their argument is that 10-15% of the population can be diagnosed with that. Not that they are. That they can. So they make their client base from a hypothetical guesstimate, based on the flimsiest possible research where the conclusion is simply a default. And they're pushing a treatment...

I'm not going to name who made the quote about whom or what because politics, but this week I saw someone say something like "We had a lot of theories, just not any evidence" and that basically sums up the whole thing here. Decades of people and their theories, always contradicted by that pesky...

Well, N=1 but the groundwater where I live has a lot of manganese, so much so that even treated with a salt filter and reverse osmosis it stains everything, so regular consumption is not a factor either way.

It's not usually understood, but most social progress of the kind that can make the entire difference for us happens through courts, making precedents and enforcing rights. For all the flak shady lawyers get, good lawyers are critical to ending systemic injustice. You can bet lawyers were a huge...

Over 20K people in Austria (and a few thousands more from elsewhere) signed a petition to get the Austrian government to do something about ME and LC. They refused everything. Everyone is shirking their duties. And this is why performative virtue signaling of this sort is a bunch of nothing...

Marvel at the wisdom of Graded Infection Therapy, where it is believed that every infection protects more than the next. I'm about 99% sure that this will be a thing for a while, deniers will latch on to anything and actually promote the idea that repeated infections offer the most protection...