Search results

It really is just like not a single lesson was learned from the AIDS crisis. Literally not a single one. Despite all the marketing and self-congratulating about it. When you abandon sick people, they will try anything to get better. Stop. Abandoning. Sick. People. Damnit!

There isn't enough known on suicides in LC, but my impression is that more often than not it happens early on, as a result of awful interactions with healthcare, driven by symptoms. Gaslighting has a body count, it drives people to suicide. As anyone with half a brain could understand, frankly...

There is a clear trend I can see in Long Covid of POTS being especially severe initially and improving over time for most, so this is not surprising. Now if only someone could learn something out of this, what changes over time instead of the usual single-points-in-time.

Yes! That's the one. I knew it wasn't right but couldn't find the right word.

All ducks and no goose. One fascinating thing is how medical pseudoscience in the 21st century is unchanged from any previous time period. The only thing that changed is everything else, the space where this quackery is applied keeps getting smaller and smaller, but everything else is locked in...

It does meet all the conditions of statutory abuse, on the basis of an official position granting power over another, and willful negligence. Those examples don't even have to be sought, they're basically typical. Every single physician who mistreated patients this way would be outraged if it...

Depends who you are and what your goals are, of course. Not everyone gets the exception, you must be that eminent. Just like they ignore patient surveys when inconvenient, but emphasize them when they can be construed as having a hint of a shadow of maybe it's not so bad. Cherry-pie evidence...

Well, that series won't win any awards, that's for sure. Guardian gonna guardian.

I technically do that, though not on purpose. Morning coffee aside, I eat my first meal at 12:00 and the last one a small snack around 20:00. For many years. Can't say it helped anything. Gut issues have been bad for a long time and no improvement there. Only antihistamines seem to help much.

Based on what I have read and heard out of desperate pwME (and LC) over the years, I find only one factor, everything else is derived from it: lack of hope. It's one thing to have a disease with support and the knowledge that people are at least trying to help, even if it's not much. But...

If you ask most people how busy their life is, most will say that are "high-achievers: people who are doing 100 things". Because normal life is plenty busy enough for the most part, despite what the cult of recreational exercise might say. That's even the main trope behind blaming all chronic...

Yup. I forgot to mention that most important detail but it's precisely because this is all used to get people back to work that this argument is absurd, that's why the DWP was involved in the first place. It's what they claim, then they turn around and say it's not a valid outcome, even though...

Some... ghostly shadow of a possible potential maybe-who-knows benefit. It was on a toast. Whole grain. No crust. When the Sun shines at exactly Noon on the Summer solstice. And you need the exact 3D glasses used during screenings of James Cameron's Avatar. Mint, in their original wrapping, and...

The language of "breakthrough infection" really shouldn't be used. It has no meaning, the vaccines don't prevent infection, this is as meaningless as "post-treatment Lyme disease", which assumes things that aren't true, no treatment is 100% effective, especially those ones, and many patients...

Hopefully it will be corrected, lots of comments on Twitter and the interviewed, Ravi, also pitched in to notify the author. Of course it's usually editors who do this...

Never thought of it this way but of course, after all everything said about us is projection: this is actual learned helplessness. "Why record this, there's nothing we can do about it?" "There's no point researching this, we're not going to find anything" "Medicine will never find a treatment...

I follow the fibro sub from time to time. What I usually see is people saying that exercising helps with the pain and in general but they can't because [describes PEM]. The rest looks pretty awful just the same: gaslighting, lose some weight (then loses weight and GP doesn't even care, moves...

Add any format of "psychosocial" (e.g. biosocial, sociobio, psychosocio, mumbojumbo), "mind-body" and "holistic" and you can basically exclude 99% of all the pseudoscience while not missing anything of value. It works very well and will probably hold true for the next half-century. Edit: forgot...