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I'm pretty sure we're asking for more, like the end to a state of systemic discrimination that mounts to gross negligence and institutional violence. Literally the barest minimum of: let's move from a state where healthcare is harmful to us to one where it's helpful while, preferably, undoing...

I have seen it in the wild a few times, so it does get out of the bubble a bit. Especially with journalists, who of course use the "leading experts" as the starting point to understand the issue, or probably get the same stories if they ask enough people. However within medicine it definitely...

It also cites an old Gaffney (of LC denial fame) study about deconditioning following extensive bed rest. The vast majority of long haulers do not meet the conditions of that study, it does not apply. This isn't hard to find, the fact that most LC cases had (relatively) mild acute illness is...

Some French scientific committee has published an opinion labeling Long Covid and post-infectious syndromes in general as functional disorders. Hard to dispute that evidence is entirely irrelevant in so-called evidence-based medicine. There's the extra irony that they are labeled as...

At least it does say this is an opinion piece. Made of opinions. Ironic to call opinions facts. "Facts and myths about vaccinations", by Andrew Wakefield. Or "Facts and myths about Scientology", by David Miscavige. Same category. The amount of pseudoscience in medicine, how welcome it is, is...

Obviously you can't do precision medicine using BS questionnaires, which have zero precision and aren't even objective values. Same as you can't do ML using a miniscule amount of data that consists of biased arbitrary questions. Big data isn't some buzzword, the data sets used to train useful...

There are definitely types of LC and ME that mirror the types of MS. Relapsing-remitting isn't mutually exclusive with fluctuating either. The types are similar to how MS is categorized, most people fit in one category, but there are several types. I'm not sure how long it would take for...

Ironic. This is the whole idea of the BPS ideology, it's basically the entire claim: it's "holistic", whatever that means. The BPS ideology is very much a dominant force in modern medicine, it has effectively creeped everywhere, it is, for all intents and purposes, the medical paradigm of the...

I think that debunking will work over time. But that's why they only ever use hints and allusions of unspecified behavior, can't counter a made-up story if it's made-up. Just like the fake threat letter. The only way we seem to know anything about those is from the people present, so that's...

LMFAO at the "machine learning" using hundreds of data points. This is basically like trying to build a house using 4 planks, half a nail and gum stuck on a shoe. Pathetic. Machine learning has only started showing useful results by building on billions of data points. And it requires objective...

Pretty much the new standard in medicine: "it can be of benefit to some". That's where the bar is, there is no need to do anything, just having something there is all that matters, it's a theater production but no one is watching so it can be said to be a smashing success no matter how awful it...

So, again, no way of knowing if those are "the incidents" they are trying to make into tempests in a teacup, but those are such incidents and amplifying those to allegations of far worse behavior has been consistent from the start. But if so, the tempest was a teacup. Or close enough. This...

So they just slap a "functional" label, then call it a day. Good enough. With gut-brain axis thrown in just because, like a mantra. WTH is "functional diarrhea" or constipation? Or "functional bloating"? How is bloating functional or not? What is this absolute nonsense? And is that abnormality...

It's actually not, and obviously so if one bothers to pay attention, so that's awkward. But facts don't matter in EBM so it figures. A solution for everything in desperate search for a problem. As novel as the Sun rising in the morning.

Those programs are called research. Anything else is worthless since it's beyond clear that medicine requires the product of scientific research before they can do anything that isn't complete garbage, the entire algorithm of healthcare requires this knowledge to exist and simply falls apart...

Ugh. Not exactly stellar, then. And the complement thing is nonsense, a single result from a single study. But they clearly misunderstanding pacing. In fact the exact opposite meaning. As usually happens. The Orwellian use of pacing to mean the opposite of what it means is endlessly revolting...

Those are the only known incidents. No evidence of any actual incidents has ever been shown, this is all using inuendo to suggest the worst, leaving people to fill in the blanks however they feel like (with definitely an inclination to think it's as bad as bombs in the mail). Maybe those are...

So, this is happening. :wtf: I love to be discussed by people who know nothing about me and debate over whether my existence is real or not. Love it.

This reckless attitude reminds me of this. When you can simply reject reality and substitute your own, nothing matters anymore. "Well if that were true it would be terrible. But it is not." And these people make a show out of pretending to listen to patients. Then they simply reply: you're...

Basically a re-hash of the usual same: CBT, ACT, GET, "central sentisization". Zero effort, barely a copy-paste job. This is reheated pseudoscience. Boo. Clueless, this is just drawing boxes and arrows for the hell of it, fits right along with the imaginary internal dialogues they imagine we...