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Bluesky: https://bsky.app/profile/tomkindlon.bsky.social/post/3kstl3nct6i2m Threads: https://www.threads.net/@tomkindlon/post/C7JavHfMBp4/

Thanks to my mum for getting everything ready for our family #TeaPartyForME2024 on #BlueSunday2024 (tomorrow). We’re doing it in aid of the Irish ME/CFS Association https://www.idonate.ie/event/bluesunday2024fortheirishmecfsassociation but other worthy charities are available.

Bluesky: https://bsky.app/profile/tomkindlon.bsky.social/post/3ksbzxx45jc2i Threads: https://www.threads.net/@tomkindlon/post/C63dlm6M4nC/

I’ve passed that on. I don’t know anything more to know how significant or otherwise the idea is.

Bluesky: https://bsky.app/profile/tomkindlon.bsky.social/post/3krqgwfa47d26 Threads: https://www.threads.net/@tomkindlon/post/C6lcb2Oscza/

I've just shared this on Twitter, Bluesky, Threads, Mastodon and Facebook Best of luck

Bluesky: https://bsky.app/profile/tomkindlon.bsky.social/post/3kr6wlnakhw23 Threads: https://www.threads.net/@tomkindlon/post/C6Tgw9ws01p/

Somebody with ME sent me this list of resources that they put together re Gaslighting. They said I could share it. I haven't looked at them myself. --- 4 Tricks for when doctors gaslight you - Dr. Kaveh LIVE - Medical Secrets (Jul 2023) The toxic power dynamics of gaslighting in medicine -...

Bluesky: https://bsky.app/profile/tomkindlon.bsky.social/post/3kq3nbgd76u2s Threads: https://www.threads.net/@tomkindlon/post/C5vYSFKMqej/

Just a somewhat belated thank you for all the nice messages that forum members have posted to this thread. And with regard to the people who nominated/endorsed me including with verbal comments, I'm just going to repeat what was posted earlier: --- Message I posted for circulation: ---...

Bluesky: https://bsky.app/profile/tomkindlon.bsky.social/post/3koyiv2atao2k Threads: https://www.threads.net/@tomkindlon/post/C5LZQiSMlS3/

The #CFS empirical case criteria (Reeves et al., 2005) are a weird operationalisation of the Fukuda criteria. I campaigned against them previously, including setting up this petition against them which people can still sign https://www.ipetitions.com/petition/empirical_defn_and_CFS_research

The #CFS empirical case criteria (Reeves et al., 2005) are a weird operationalisation of the Fukuda criteria. I campaigned against them previously, including setting up this petition against them which people can still sign https://www.ipetitions.com/petition/empirical_defn_and_CFS_research

No, that's a separate paper though maybe on the same cohort. That paper relates to the results of 12 weeks.

Michael Sharpe’s treatment approach, graded activity-oriented CBT, doesn’t pay attention to patients’ fears & emotions. It’s a one-dimensional approach that tells all #MECFS patients to do more, promising recovery. When their own study found no increased recovery, they redefined recovery in a...

For what it is worth, I have been sharing this on social media: Press release that is getting a lot of coverage: #LongCOVID ‘indistinguishable’ from other post-viral syndromes a year after infection https://www.eurekalert.org/news-releases/1037611 I think diagnoses like #LC & #MECFS are...

Bluesky: https://bsky.app/profile/tomkindlon.bsky.social/post/3kndrvzl4ia2r Threads: https://www.threads.net/@tomkindlon/post/C4VafWnMwV3/

Submit comments on NIH paper here: https://www.nature.com/articles/s41467-024-45107-3#article-comments I'd recommend being polite. Better again if you can reference a scientific paper. Looks like it could be hard to get formal letters to the editor published for this open access journal...

Very disappointing: $8M NIH study used some of the very broad and inappropriate thresholds* that are part of the Reeves et al (2005) criteria that I thought had been consigned to history . Note: these are either/or *not* all *Though thankfully the SF36 emotional functioning element was dropped...

The author, who has ME/CFS, sent me the following link to highlight his new book where one of the main characters has ME/CFS and fibromyalgia. I don't know anything more. A few reviews are up on the link given in the tweet. THE EMBLETON MURDERS After ten years of working at Embleton University...