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I believe the guidelines committee was due to start in November 2024. The Irish ME/CFS Association was not contacted to suggest a member so we have no representatives on the committee.

I believe that ME Advocates Ireland would like separate guidelines for ME and CFS. I'm not sure the current position of the guidelines committee. Here is a post from ME Advocates Ireland outlining their position: "Differences between Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome...

https://www.hse.ie/eng/about/personalpq/pq/2024-pq-responses/april-2024/pq-19209-24-cathal-crowe.pdf 15th May, 2024 Deputy Cathal Crowe, TD Dáil Éireann Leinster House Kildare Street Dublin 2 RE: PQ 19209/24 To ask the Minister for Health the actions his Department is taking in relation to...

Also from: https://meadvocatesireland.blogspot.com/2022/09/news-from-hse-re-clinical-guideline-for.html 3) HSE letters about the Clinical Guideline · Letter to inform you · Letter to inform your Doctor and Health Professionals ------ By Email Only DATE: 2nd September...

I thought it could be worth setting up a separate thread on this. These guidelines are separate to the NICE guidelines. Here's some background information from the ME Advocates Ireland website: https://meadvocatesireland.blogspot.com/2022/09/news-from-hse-re-clinical-guideline-for.html The...

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Now shared on Facebook in case anyone wants a post to share there: Also: https://bsky.app/profile/tomkindlon.bsky.social/post/3lhwcke6qyk2i

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Charles has issued clarification on the research that the ME Association may be funding: https://www.facebook.com/meassociation/posts/pfbid02gGWy2DdUqHmMcfQJcV5ZHfzNJN2hMiuQvRp2iZH87ZEvF4iR1CeKjyrqGTKPJrkfl...

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