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Thanks to my mum for getting everything ready for our family #TeaPartyForME2025 on #BlueSunday2025 (tomorrow). We’re doing it in aid of the Irish ME/CFS Association https://www.idonate.ie/event/BlueSunday2025fortheIrishMECFSAssociation but other worthy charities are available (see...

https://www.threads.com/@tomkindlon/post/DJiEMXjorbj

At David Tuller's 2024 Irish talk (see here...

https://www.threads.com/@tomkindlon/post/DI9-MlrIThx

Donated

https://www.threads.net/@tomkindlon/post/DItR-xBo33_

https://www.threads.net/@tomkindlon/post/DIZ36zCIuXA

Just shared around some of your posts on some of those platforms. Thanks for your good work and best of luck.

https://www.threads.net/@tomkindlon/post/DIHqQRUMrRH Facebook

https://www.threads.net/@tomkindlon/post/DH1m0_pMVBA

https://bsky.app/profile/tomkindlon.bsky.social/post/3ll2crtm3cc2p https://www.threads.net/@tomkindlon/post/DHiwNymsAaJ?xmt=AQGzMVcxDNdM-5OwH3muaQ5n2lwAOMrRxwmGxuIJLEUEWg https://disabled.social/@tomkindlon/114211910594721100 https://www.facebook.com/share/1LwyZvvPY1/?mibextid=wwXIfr

With Andy retiring, I wasn’t sure if this was being done: https://bsky.app/profile/tomkindlon.bsky.social/post/3lkja4u3zzc2y https://www.threads.net/@tomkindlon/post/DHRQzCpsiAr https://disabled.social/@tomkindlon/114173442330353132 P.S. I’m not going to do one for the published papers.

Threads: https://www.threads.net/@tomkindlon/post/DG-jIY-Myjy?xmt=AQGz9HW2BOLCB1poK23JFlrjiIZz-KxTwcgqseQSsXbfzg

Not sure if I have said this much but this was written for the PACE Trial special issue. The original title had the PACE Trial in it because that is what it focuses on but then the editor asked me to shorten it. If I was writing something from scratch on “Do graded activity therapies cause harm...

A reply: Mads ‪@blueforpwme.bsky.social‬ Meant to add that I also tried the LP back in 2010/11 and felt like a superhero for a few weeks then crashed badly with awful flu symptoms, fever, swollen lymph nodes etc https://bsky.app/profile/blueforpwme.bsky.social/post/3ljn5ypzyl22s

Adverse reaction following the Lightning Process shared today on my FB page Because participants are programmed to say they are well and not mention symptoms & impairments, positive testimonials are very unreliable

Threads: https://www.threads.net/@tomkindlon/post/DGshCx8MaeQ

We have been on previous committees the HSE have had including one that ran from 2019 for a few years that led on to this process. But weren’t invited to this. I think there aren’t many patient representatives on this. Don’t know whether the Irish ME Trust are on this. They are closer to ME...

I've started a new thread on this here: HSE Clinical Practice Guidelines for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (Ireland)