Another reason I have heard given for not doing things more slowly is people want to move on to college at the same time as their peers or finish college and move on with/to the adult part of their lives. Again understandable. There can be lots of forces pushing people to take on full time...
A corollary of this is that just because somebody gets poor or just less than stellar results doesn't mean they weren't making a lot of sacrifices. A student with ME/CFS may have made more sacrifices than the norm but because of the inherent difficulties in achieving academic productivity as I...
A lot of the people I have in mind are people on the milder side of things who probably don’t have any mobility aids and can pass as healthy/non-disabled. “Everyone” (the system, parents, often the student themselves) don’t consider that a full workload might not suit them, as their disability...
I recall suggesting to one person they consider doing a reduced workload when starting third level education. They said they wanted to have the same friend group throughout college. I can understand that desire. Anyway she dropped out in the first term.
I’ve heard people with ME/CFS, and advocates for students with ME/CFS, concentrate a lot on getting extensions for assignments. While they can have a value, they don’t decrease the quantity of work at all. They just delay the work which may clash with subsequent work or mean someone has less...
For what it is worth, a short blog post I wrote earlier which I thought I would share:
https://forums.phoenixrising.me/blog-articles/3-basic-reasons-why-people-with-me-cfs-cant-be-as-academically-productive-learn-as-much-in-an-academic-year-as-they-could-be-before-the-illness.3754/
This was...
Source: British Association of Clinicians in ME/CFS (BACME)
Date: October 17, 2025
URL: https://bacme.info/event/bacme-conference-20251017/
BACME Conference:
Meeting the needs of people living with severe and very severe ME/CFS and their carers...
https://meglobalchronicle.wordpress.com/2025/06/04/news-from-ireland-12/
The HSE National ME Clinical Guideline (Ireland) update
The HSE National ME Clinical Guideline development project in Ireland is still at the early stages but the work is now well underway. An agreed priority for the...
Stuart Murdoch
Clip • 16 Mins • 13 MAY • Arena
Belle and Sebastian frontman, Stuart Murdoch, talks to us about his debut novel Nobody’s Empire. https://www.rte.ie/radio/radio1/clips/22512443/
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Comment: 16-minute interview on Irish national radio. ME is mentioned a large amount of times...
I was fortunate to experience a nice family #BlueSunday2025 #TeaPartyForME2025 celebration yesterday in aid of the Irish ME/CFS Association
https://www.idonate.ie/event/BlueSunday2025fortheIrishMECFSAssociation
Thanks to my mum for all the work she put in organising it and to everyone who...
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