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    Norwegian Fluge & Mella daratumumab Haukeland trial 'ResetME' now accepting international donations

    Google translation link for article on study https://www-nettavisen-no.translate.goog/nyheter/vilde-33-med-i-ny-me-studie-pa-haukeland-gir-meg-hap/s/5-95-2631063?_x_tr_sl=no&_x_tr_tl=en&_x_tr_hl=en-US&_x_tr_pto=wapp I have just highlighted it with a donation link in these places: X Bluesky...
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    Norwegian Fluge & Mella daratumumab Haukeland trial 'ResetME' now accepting international donations

    I've shared the new English-language page on a number of social media platforms Twitter Bluesky Threads Mastodon Facebook Tumblr Instagram (account @tomkindlon)
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    3 basic reasons why people with ME/CFS can’t be as “academically productive” (learn as much in an academic year) as they could be before the illness

    This post, from Chronic Rising, itemises a lot more reasons why school and college can be difficult or in some cases impossible for people with ME: “Why Children and Young Adults with Myalgic Encephalomyelitis (ME) Can't—or Struggle to—Attend School and University”...
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    HSE Clinical Practice Guidelines for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (Ireland)

    Some good news: Prof Brian Hughes The Irish health service has initiated a process to develop a clinical guideline for ME (#MyalgicEncephalomyelitis). I am honoured to be part of its Steering Group The process so far has been extremely progressive I am hugely optimistic that a world-leading...
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    Open Norway: Plasma cell aimed treatment with daratumumab in ME/CFS (ResetME) - Haukeland University Hospital

    I've now shared the new English-language page on a number of social media platforms Twitter Bluesky Threads Mastodon Facebook Tumblr Instagram (account @tomkindlon)
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    Tom Kindlon - ME/CFS Advocate

    I went to one previously there and they arranged a room I could go in to rest (which I used throughout the night) and which they say I can use again. And will be using my mobility scooter. So looking forward to it (except the speech!).
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    Tom Kindlon - ME/CFS Advocate

    While not Trinity College, the past pupils' organisation for the previous educational institution I attended, Belvedere College, are giving me an award for my ME/CFS work over the years. Belvedere Union 1d • Edited • 1 day ago • Edited • Visible to anyone on or off LinkedIn Belvedere Union...
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    Video: Who Funds Research? | Why The Charity Sector is Vital For Long Covid & ME/CFS

    Here's a blog post I wrote 5 years ago with some figures from the time: "UK medical research charities spend a broadly similar amount to the taxpayer-funded National Institute for Health Research & Medical Research Council"...
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    International: Science for ME social media posts

    For this week Twitter Threads Facebook
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    HSE Clinical Practice Guidelines for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (Ireland)

    https://www.hse.ie/eng/about/who/cspd/me/me.html HSE.ie Clinical Design and Innovation Myalgic Encephalomyelitis (ME) Myalgic Encephalomyelitis (ME) Myalgic Encephalomyelitis (ME) is a serious...
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    International: Science for ME social media posts

    For this week Twitter Threads Facebook
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