Google translation link for article on study
https://www-nettavisen-no.translate.goog/nyheter/vilde-33-med-i-ny-me-studie-pa-haukeland-gir-meg-hap/s/5-95-2631063?_x_tr_sl=no&_x_tr_tl=en&_x_tr_hl=en-US&_x_tr_pto=wapp
I have just highlighted it with a donation link in these places:
X
Bluesky...
I've shared the new English-language page on a number of social media platforms
Twitter
Bluesky
Threads
Mastodon
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Instagram (account @tomkindlon)
This post, from Chronic Rising, itemises a lot more reasons why school and college can be difficult or in some cases impossible for people with ME:
“Why Children and Young Adults with Myalgic Encephalomyelitis (ME) Can't—or Struggle to—Attend School and University”...
Some good news:
Prof Brian Hughes
The Irish health service has initiated a process to develop a clinical guideline for ME (#MyalgicEncephalomyelitis). I am honoured to be part of its Steering Group
The process so far has been extremely progressive
I am hugely optimistic that a world-leading...
I've now shared the new English-language page on a number of social media platforms
Twitter
Bluesky
Threads
Mastodon
Facebook
Tumblr
Instagram (account @tomkindlon)
I went to one previously there and they arranged a room I could go in to rest (which I used throughout the night) and which they say I can use again. And will be using my mobility scooter. So looking forward to it (except the speech!).
While not Trinity College, the past pupils' organisation for the previous educational institution I attended, Belvedere College, are giving me an award for my ME/CFS work over the years.
Belvedere Union
1d • Edited • 1 day ago • Edited • Visible to anyone on or off LinkedIn
Belvedere Union...
Here's a blog post I wrote 5 years ago with some figures from the time:
"UK medical research charities spend a broadly similar amount to the taxpayer-funded National Institute for Health Research & Medical Research Council"...
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