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From their latest newsletter: New online resources for Health Professionals Emerge Australia's Education team has been working hard over the past 12 months to develop a set of resources directed at GPs and other Allied Health professionals. The new section on the website provides a range of...

From: NIH MECFS Information <NIH-MECFS_INFORMATION at LIST.NIH.GOV> On Behalf Of NIH MECFS Information List Sent: Thursday, August 3, 2023 3:02 PM To: NIH-MECFS_INFORMATION at LIST.NIH.GOV Subject: News from NIH: ME/CFS Research Roadmap Webinar Series Kickoff – August 25, 2023 The first...

"Caring for people with ME/CFS who are bedbound" (2023) 8-page fact sheet from Emerge Australia https://emerge.org.au/wp-content/uploads/2023/04/caringforpeoplewithmecfswhoarebedbound.pdf

Sounds good. Thanks for doing it.

One week to go. Hopefully lots will use it as an opportunity to raise awareness and understanding. Some severely affected patients may be unable to do it themselves so either carers or others in the community may need to do it I think it's in the interest of all patients including those who...

This response has also not appeared so far on the @JNNP_BMJ site along with one @Joan Crawford submitted

Very disappointing that 14 days have now passed & this hasn’t been posted by the @JNNP_BMJ Unlike another comment that was removed, this shouldn’t fall foul of any inflammatory rule (I have read it) Readers deserve to see another opinion from the one in the commentary #mecfs #pwme

Bloom Emerge Australia welcomes recording artist Bloom as our newest Ambassador. https://www.emerge.org.au/people/bloom/

This has now been published. Free fulltext: https://link.springer.com/article/10.1007/s10456-023-09885-6

This article doesn't include that many details Casey Stoner provides health update on chronic fatigue issues https://www.crash.net/motogp/news/1032426/1/casey-stoner-provides-health-update-chronic-fatigue-issues “There was a period in which things seemed to have improved, then upon returning...

A light-weight article about Martine McCutcheon sharing on Instagram that she had suffered a big flare up of her #CFS lately. https://www.thesun.ie/tvandshowbiz/11105677/martine-mccutcheon-weight-loss-family-holiday/

First time I recall seeing a one-page sheet like this: "ME/CFS* IN PRIMARY CARE: Guide to Assessment and Management" *Myalgic Encephalomyelitis / Chronic Fatigue Syndrome I'd prefer if professionals read a longer document but if one could only get them to read something short, perhaps it has a...

The Potential Role of Ocular & Otolaryngological Mucus Proteins in Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Free full text https://www.researchsquare.com/article/rs-3171709/v1 Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating illness associated with a...

A recording has now been posted in the last 24 hours. A webinar recording featuring a presentation titled, “Myalgic Encephalomyelitis/Chronic Fatigue Syndrome-like Illness Following COVID-19 in a Large Integrated Health System: Findings from the STOP ME/CFS Study” by Dr. Jacek Skarbinski...

Here are other conference presentations and published pieces by this group: https://documentserver.uhasselt.be/browse?type=author&authority=rp06706 There looks like there is some repetition. I'm not sure I will go to the trouble of checking whether they all have their own threads and posting...

https://documentserver.uhasselt.be/handle/1942/40595 Title: Autonomic nervous system dysfunctionalities in patients with stress-related and functional syndromes versus healthy controls Authors: RAMAKERS, Indra VAN DEN HOUTE, Maaike VAN DEN BERGH, Omer VAN OUDENHOVE, Lukas BOGAERTS...

Update from JNNP re: @MEActNetUK eletter "Please note that a previously posted Rapid Response was taken down because of inappropriate inflammatory language. While we encourage scientific discourse, it should be polite and non-defamatory..."...

I wouldn't consider this to be the BMJ. The BMJ itself though being very biased in its coverage of ME/CFS has actually been very good at posting critical e-letters from patients on the BMJ journal website

The Journal of Neurology, Neurosurgery & Psychiatry has now removed the @MEActNetUK e-letter (see: https://www.meaction.net/2023/07/12/meaction-uk-submits-a-rapid-response-to-the-jnnp-in-support-of-nice/ ) in response to "Anomalies in the review process and interpretation of the evidence in the...

CONFESQ Launches III Research Conferences on Fibromyalgia, Myalgic Encephalomyelitis, Multiple Chemical Sensitivity and Electrohypersensitivity Info...