Search results

This is what I came here to say. I bought mine on eBay for £150 because I couldn't face the faff of going the NHS route at the time. But I will get my next one via the NHS. I've never had so much as a raised eyebrow for using it or for getting up and walking up a step or to the car if I need...

Mine's on a quiet move sideways to a position where she can't embarrass Bristol too much (unless she really puts her mind to it).

Yay! Totes emosh, I'm tearing up here @dave30th - Magic news, thank you!

Listened to both interviews today, great job @Gary Burgess. You're the first person I've heard describe an out of body experience as a symptom. I had them frequently in my first 2 years, but had completely forgotten about them - typical ME memory, lol! On the last caller to the phone in, I'd...

Let's hope so, but our gain would be another patient group's loss. Do you think she'll get them to stand in a circle and shout 'Stop!' at their infected appendixes?

Between you, me and several hundred close friends, I've been suicidal too at times. I think the majority of us have. But there really is hope, everyday there is an article, a blog, a program, a research paper or something about ME. There is a momentum now that there wasn't when my POTS hit 8...

Hugs to you both and welcome to the forum :hug:

9-10 hours but I wake repeatedly.

I've been sleeping in a hoodie with the hood up, that's stopped me losing too much heat from my head which has helped big time during this cold snap. I'm also sleeping in a t-shirt, a long sleeved t- shirt, fluffy pjs and 3 pairs of socks. I have a light weight duvet, 2 quilts, 2 blankets, an...

I think if I'd been hit with the reality of our situation in my first year of ME I'd have topped myself to be completely honest! Can we be gentle with the newbies please? Especially those we want to hang around!

Sadly all the props used in events such as the Olympics get thrown in skips or snaffled by the staff in the rush to get out after the event. Mr S has worked at such events for years, his woodshed is full of things that the everyday folks leave behind, I married a Womble.

No worries @Agapanthus :) I've just remembered @FreeSarah lives down here too - so sorry I forgot you:oops:

I'll do everything I can to get us noticed. The ME Association have a brilliant toolkit of supplies to help fundraisers so I'll take all the help they can give. They offer leaflets, posters, balloons, collection boxes, help advertising in the local press, two just giving buttons for webpages...

:hug: Thank you @Jan :hug:

Can't promise yet @ladycatlover but I think we'll be able to live stream it to Facebook and post a link here. We often have choir family members record performances on their phones and upload to the In Tune Facebook page, but it would be nice to try to record it properly. I will try to find a...

Thank you @Andy :) I'll keep my fingers crossed the stars align correctly @Binkie4, it would be wonderful to meet you in person. @Jan @MeSci @Agapanthus hope you'll be able to make it. Please tag anyone else who might be interested. Last year the bluebells were in flower on May 12th and I'm...

It was confirmed last night that my choir, In Tune, will be singing for ME Awareness Day, 3pm in the atrium at Wheal Martyn China Clay Museum, St Austell. I've been blown away by the positive messages and feedback from choir members about the idea and amazed at how many people have or have had...

No! From the cut she got helping Joe? OMG. Thank you @Trish and @Binkie4, not sure I'm up to listening to that today.

Who died on the Archers @Trish? Friends appeared and I missed the omnibus

I love how we PwME pass the time! Watching food preparation makes me hungry, so I try really hard to avoid it. You'll not tempt me to eat all the pies @large donner, but the hard boiled egg in the middle of @arewenearlythereyet's Gala pie is calling to me, I can't resist a posh scotch egg!