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I'm sorry to hear that. I can absolutely imagine that it is so. There should be more research about how psychosomatic treatment harms people.

I had missed this study and David's blog post. I think studies like this can be impactful for making people understand how harmful the psychosomatic perspective can be for people with ME/CFS.

Even if I don't agree with it I can understand their rational when they do this towards patients and for advocacy. What I really don't understand is that people do this in scientific research. Are there no understanding and norms in the field that it is important to be clear about what they are...

Why do people use the term "CBT" when discussing treatment f or ME/CFS (and other conditions)? CBT can have wildly different content and goals. People need to specify the contents of the therapy! It seems extraordinary sloppy to speak about simply "CBT", especially in a scientific context...

These kinds of cases are really interesting and I think they are great examples to use as arguments against the psychosomatic proponents.

Yes, it's amazing how functional people ascribe such tremendous power to words. It's a reoccurring theme. Don't use the wrong word with a patient! Or the wrong tone of voice! That might make them disabled for life! Always sound positive and mislead and half lie if you have to to do that. It...

Presentation slideshow by Arwa Josefsson about "Funktionella besvär". Found by chance: https://vardgivare.regionkalmar.se/contentassets/c8f7212fe6494cb7b6420ecf526853e0/funktionella-besvar-om-att-inkludera-hellre-an-att-exkludera-241123.pdf

Same.

For fun I looked up the diagnostic criteria for "somatic symptom disorder": So it's basically all subjective and up to the psychiatrist. Exactly. The linked page contains an interesting comparion between DSM-4 and DSM-5. The criteria have been made more gereral, abstract and wide. But...

Okay, this person on the other hand seems to be a full BPS loony: Arwa Josefsson about long term pain https://sfampen.transistor.fm/episodes/arwa-om (Still only Swedish.) She's on the same level as that horrible Carl Sjöström about whom @The ME Inquiry Report wrote. "I'm enthusiastic for a...

I planned post the following episode from the same podcast from SFAM mostly as rage bait to y'all: Medicalization of difuse symptoms on psychological bad health https://sfampen.transistor.fm/episodes/medikalisering-av-diffusa-symtom-pa-psykisk-ohalsa (Sorry, only in Swedish.) It starts in...

I agree. I immediately start to construct techniques in my head to deal with physicians who use these techniques. Maybe it would be a good idea to write our own guide for techniques for dealing with the health care system. Maybe there already is such a guide.

I get the impressions that RME give their interpretation, both from what the clinic says about their diagnostic criteria and from what patients have told RME. They also write this (bad translation): To me it sounds like the representatives from RME have noticed about the same thing as you...

RME (Swedish ME association) has published an internal post for members about their meeting with the clinic 2025-06-08: This is consistent with what @The ME Inquiry Report writes.

Hans Knoop!?! The psychologist whose specialty it is to collect actigraphy data and then not publish it when it contradicts the positive questionnaire results? Who says that activity level is irrelevant to fatigue? What does he do in a study like this?

Hah! Exactly! Related to the clinic that was "crafting experiences of liminality". I seriously think that there is something to this. I think it is a thought pattern that is common -- and sometimes valid -- in the humanities. In such a context, if you say something that others find inspiring...

ME Inquiry Report: Thanks for the investigation! Two things about which it would be interesting to get information: 1. What patients of the clinic thinks. How could we get in touch with patients? Maybe we could get RME could post on their mailing list that someone is interested in getting...

My GP offered to write a referral to this clinic for me. I am glad I declined. So this hits close to home for me. I thought the psychosomatic theory was on the decline in Sweden. This is a wake-up call for me.

Varda links to a popular science article about this study here: The popular article mentions ME several times but the scientific article doesn't mention ME or CFS anywhere in the abstract or introduction. How relevant is the scientific article to ME/CFS?

Thread about the study here.