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I happened to come across the following charmingly named site: https://fndnope.org I don't see it mentioned on the forum previously. Here are a few articles that seem relevant for the forum: https://fndnope.org/posts?postId=36 https://fndnope.org/posts?postId=47...

I suspect that similar studies for other medical condition would come up with similar results. @ME/CFS Science Blog's blog series about psycho-somatic medicine comes to mind, and the various theories that have existed for various conditions. That series is a gem to use to understand and argue...

Now the donations page seems to work again.

This is my speculation about why some gentle exercise programs like this might help to achieve an improvement for some people with ME/CFS, but not a recovery: Maybe many people with ME/CFS have the capacity for a little exercise before deteriorating, but only a little. But because it's hard to...

The donation page bugs out when I try to donate today. I have messaged the responsible person.

An article by Elke Hausmann about The Age of Diagnosis has the following interesting comment by a person who claims to be a psychiatrist with long covid: Exactly this is it that Dawson practices! PS: The comment poster Tom Molmans would probably get along well with the members of this forum...

I post here a link to my earlier post about a podcast featuring the author: https://www.s4me.info/threads/functional-neurological-disorder-fnd-articles-social-media-and-discussion.23802/page-34#post-660377

I agree strongly. :) One additional reason for the name ME/CFS: With a long and weird acronym like this I think that the tendency is smaller for people to focus on the actual meaning of the constituent terms. So that avoids a little bit of the problem with the two misleading terms ME and CFS...

It seems to be exactly this! https://pmc.ncbi.nlm.nih.gov/articles/PMC10864787/ Also signed by among others Jonathan Edwards, Mady Hornig, Brian Hughes and David Putrino.

It seem like a weird contradiction. One explanation: This statement: ...is supported with a source which says this: To me it seems like a misinterpretation of "functional and psychological symptoms" to always imply FND. So they hugely exaggerate how common FND is.

I'm curious about what the discourse analyst has to say. Does she talk about how people with ME/CFS and long covid are mean because they don't accept an FND diagnosis? @forestglip Do you have access? Have you had a look? Can you give a short synopsis?

Podcast with the author: https://www.sciencewritenow.com/listen/cognitive-conversations-9-language-matters-re-writing-the-narrative-of-functional-neurological-disorders-fnd She is presented like this: The rest of the podcast participants seem to be FND people.

Aha: The authors are all from the same institution as our old friend Per Fink.

I'm wondering about the same thing as @rapidboson. People on Reddit talk about huperzine as a poor man's pyridostigmine. Huperzine is an acetylcholinesterase inhibitor, just like pyridostigmine. Have anyone tried huperzine for POTS or other kinds of OI? Does it seem reasonable for the...

One positive aspect is that ME/CFS and fibro is grouped together with the clearly physiologically driven MS and EDS, instead of together with for example depression and psychogenic seizures.

I have no idea. This an interesting problem. This must be a common thing for all clinical trials where the medication have clear, easily identifiable side effects. How do they usually solve this?

Judith Bruchfeld, one of the investigators, is interviewed on This Week in Virology taking about the study. She confirms that the odd trial design is for blinding and the bitter taste from Paxlovid. The article about bitter taste says that ritonavir tastes bitter but doesn't give a persistent...

PS: I tried Paxlovid for 10 days. The taste is truly nasty!

I had a guess that maybe the odd design was because of the "paxlovid mouth": the nasty, bitter taste that many people get from Paxlovid. Blinding would probably be less effective if control participants had placebo/placebo and didn't feel a bitter taste. But then I found this article which...

MicrobeTV discuss this article: