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I tried a collagen supplement earlier this year in powder form. Quite expensive. I gave up trying new supplements etc. years ago but this was bought for me. My hair condition did seem to improve but I have a super sensitive stomach that reacts to weird things and I think it may have upset my...

Thank you Simon, this is really helpful.

The key word here is 'potential'. Definitely interesting but still very early days.

On 9th May, ME/CFS Research Foundation tweeted, "We are working to make recordings available after the conference (pending speakers consent). Also we intend to publish a results summary for patients and the public on our website."

This looks really good. Well done Doctors with ME. I'd be very happy to show this to my GP.

Well, I went online at 5pm to watch Prusty's talk and realised that, of course, Germany is one hour ahead of the UK :dead: I'll blame cognitive disfunction ;) I'm interested to hear Fluge talking tomorrow. I wonder how Fluge and Mella's work fits with Prusty's. I'd like to hear them in...

I've received the email addressed to Mr as well, I'm usually Ms, sure I didn't declare myself a Mr on the form. Quite amusing!

I'm a bit confused by the website. Can patients sign up to listen to the talks online?

Interesting for us, but if I knew nothing about DecodeME and was encountering the website for the first time, I'm not sure a running total would persuade me to sign up. Maybe I'm wrong. But I do think it's important not to overload the website with too much information.

Thanks everyone. I had another go with my silicone ear plugs last night but used a 'new' piece so it was soft and pulled off smaller bits as suggested. It worked quite well and was comfortable. Only problem is that I'm so strung out from lack of sleep these days I can only actually get to sleep...

Unfortunately, I'm being woken up a lot in the night by a house mate getting up to go to toilet/ go downstairs and it's really impacting my symptoms badly. I wonder if anyone has found any ear plugs or noise cancelling headphones/head bands that are comfortable for wearing at night? I'm a side...

I just got my email today too. Very pleased to hear they've managed to extract my DNA!

I developed food sensitivities of about ten years into having ME (I thought I'd got away without them but turned out they were just biding their time!) I was prescribed sodium chromoglycate capsules by Dr Bansal which helps to some degree. You take them half and hour to an hour before eating...

Yeah, I don't really understand, read the thread and I'm none the wiser!

I think Martin is a member here, I can't remember his user name.

Utterly heartbreaking. Thank you for writing this piece.

I considered trying it about about 8 years ago but I lurked on an LDN for ME facebook group for a year or so and noticed that very few people seemed to get a long-lasting improvement and the side effects seemed to be significant so I decided against it.

I follow her on twitter and I think she's great. I don't recall her ever mentioning ME/CFS, it's not really her area. @CRG does she mention ME in the clip you've posted?

Amazing! I wonder if this is going to be a possibility in lots of different cancers :emoji_fingers_crossed:

Me too! Happy and relieved it arrived. For anyone else still waiting, it was 4 and a half weeks between me posting it and getting the email. Thanks @Andy for keeping us updated on here, it meant I didn't pester them with unnecessary emails whilst I was waiting!