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  1. Wonko

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    Read the reviews, of a few models I didn't go for any of the Sony headphones because I don't like bass much, and reports of them not lasting all that long due to build quality issues. Kinda mitigated the 8 hours extra battery life I didn't go for the bose 700 coz there was something I didn't...
  2. Wonko

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    I acquired a pair of Bose QuietComfort 45's from amazon a few days ago (on their pay over 5 months scheme). It's 'unbelievable' how much they cut the noise down in my relatively quiet flat (compared with where i used to live anyway). It's not, most of the time, that noisy here, but I do have...
  3. Wonko

    “Your Blood is Black”: My ME/CFS Experience with HELP Apheresis in Germany

    The last time my blood was taken it looked black to me, mainly noticed coz it was vicious enough to take minutes to fill a vial and the nurse waved it front of my face asking if it looked normal to me. My understanding is that 'black' is a perfectly normal colour for blood, unlike green, which...
  4. Wonko

    UK Government ME/CFS Delivery Plan consultation

    I may have missed it but why would I sign a BPS letter given how pwME have been regarded by them?
  5. Wonko

    Anyone tried Zoe - a nutrition app?

    Yep, based on their website Zoe costs £600pa - but I'm not sure what for. Context (as this little state funded pwME could in no way afford that, even if I could see a point) - my sister has been on about it for months, and last time I was round hers she announced that she was getting everyone a...
  6. Wonko

    Acupuncture and other traditional Chinese medicine news and discussion thread

    So they've been forced to refund all customers who expected that their 'treatment' would cure long covid, and paid money to be cured accordingly, plus forced to pay compensation in the amount of 1 years turnover per defrauded client? Harsh, possibly could be seen as unfair, but then...so were...
  7. Wonko

    Fundraising for ME/CFS research - opportunities, problems

    For myself, and I suspect a lot of pwME, it comes down to money, lack of. I have donated to many things ME related in the past, but ATM my life is much more unstable. Yesterday I got my monthly Universal credit payment, and paid all my bills, bar one small one. I have one lot of shopping...
  8. Wonko

    Assessing ‘no evidence of disease activity’ status in patients with relapsing–remitting MS: a long-term follow-up, 2023, Chiara Zilli et al

    I can't help but wonder if Sherlock is still in the bathroom..... Treating sick patients with highly effective drugs helps them, and therefore may be cheaper than doing other things, including not treating them. Whatever wacky idea works I suppose.
  9. Wonko

    Research links chronic constipation to cognitive decline

    I'm not sure that this isn't just a snide way of them saying that in their professional opinion people with cognitive issues are full of sh$%.
  10. Wonko

    BPS attempts at psychologizing Long Covid

    No matter how many times I 'affirm' that I'm in charge, that I 'own' the world and control all natural, and unnatural, law...it doesn't make it true....... ..at least so I assume (I assume that over the centuries many people have thought/affirmed similar things, and it wasn't true for them, so...
  11. Wonko

    UK: Doctor Leaders To Hold Vote Of No Confidence In The GMC

    ...possibly with a nice calming and cooling water feature....
  12. Wonko

    FT: Harvard dishonesty expert accused of dishonesty

    So an expert in dishonesty has been dishonest, getting away with it for at least a decade? They've used their training in dishonesty, presumably to do it properly, much better than unqualified non expert dishonesterers. Getting away with it for over a decade - that's ongoing commitment, and...
  13. Wonko

    Uplifts and hassles are related to worsening in chronic fatigue syndrome A prospective study, 2023, Friedberg et al

    Surely, as the ducks are content and it's just some people who are not happy about that, in order to increase the contentedness in the park it'd make much more sense to cull the unhappy people. It'd also be more profitable as dead ducks generate zero to negative income for the local council...
  14. Wonko

    Evaluation of Brain-Body Health in Individuals With Common Neuropsychiatric Disorders, 2023, Mosley et al

    Of course, as a cost cutting exercise, it's possible that by the time this hits the medical front lines, this will all be simplified to people who are not fit and 100% health being mentally ill, so treat accordingly, and follow a random mental health pathway, giving essentially random drugs 'to...
  15. Wonko

    Newly discovered trigger for major depression opens new possibilities for treatments

    Lots of science, lots of work, all to avoid doing anything to change the system which might make life less depressing for the masses. It's not our fault, it's not the systems fault, it's this little amino acids fault.
  16. Wonko

    Long Covid in the media and social media 2023

    Not just RG, as according to my memory's SW is reputed to have said words to the effect that ME/CFS simply didn't exist in most places. That it was a condition only found in cultures like the UK. I also belive he specifically said it didn't exist in France. Which may be sophism, as while the...
  17. Wonko

    Long Covid in the media and social media 2023

    Was the placebo lard based.:laugh:
  18. Wonko

    News from the USA, United States of America

    So $130 million to fund an agency that serves 'hundreds of millions of people'. From which I would conclude that each of these people is worth no more than 30 cents to those who've decided that this level of funding is not just appropriate but worth crowing about. .....and as far as it looks...
  19. Wonko

    Long Covid in the media and social media 2023

    Nah, I've eaten kale and vegetables still exist. All eating kale does is make me not want to eat kale. Of course there is nice'er kale, but as a matter of policy, it seems that in the UK this is unavailable, having been replaced by chopped up bits of wood.
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