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  1. Wonko

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    He was, with everyone's favourite person - Clare Gerada. I don't know when it started but the segment ended at 8.45am, on the BBCs 'Breakfast' program this morning.
  2. Wonko

    UK: Public survey to gather views and experiences for the National Strategy of Disabled People, closes 23rd April 2021

    Reasons may include; The DWP, ATOS, Capita, Maximus, any other agencies used to keep claimants at arms length, lying unqualified assessors, a system designed to reward that, coupled with very low rates of payments should anyone manage to successfully get through the system and actually get an...
  3. Wonko

    Homebound versus Bedridden Status among Those with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Jason et al

    I looked this up a few days ago, and the operating definition, by GP's in the UK seems to be; Which still leaves me none the wiser but as it uses 'at all', whereas I can, under normal circumstances, leave occasionally, for specific reason, provided the destination isn't too far from a bus...
  4. Wonko

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Ah, so me is caused by not being mad enough then
  5. Wonko

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    At least when sacrificing a chicken to the great spirits someone ends up with a chicken dinner. Not sure what the benefit of this approach is, unless you happen to be a chicken.
  6. Wonko

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    I agree with @Sasha - MP's reflect their parties views and priorities, not those of their constituents. I struggle to see how people, who aren't involved with healthcare in some way, could possibly be expected to realise there are issues, when even now we are being misdirected by the...
  7. Wonko

    Symptoms of Covid-19

    Be aware that they eat batteries, one every few months even if not used - so before putting away in a draw take the battery out. They could, at least a couple of days ago, be had for a fiver for a cheap one (direct from China - where they are seemingly all made these days). After the news...
  8. Wonko

    Restless legs syndrome

    Surely sticky restless legs would not be an improvement?
  9. Wonko

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Obviously this information is available from youtube. People care about boots/shoes, unboxing of items they will never own, and kittens. They do not care about healthcare as videos about it are neither aspirational nor do they make them feel good.
  10. Wonko

    Oxalates may be a problem for people with M.E.

    Need tenderising - but tenderising them is illegal.
  11. Wonko

    Oxalates may be a problem for people with M.E.

    Doesn't everyone? AT least everyone who is currently defined as living, as opposed to the many other states of being. Metals are on the list of things I am not supposed to eat, so whilst I ingest some metals, from the other things i am not supposed to eat, I don't tend to eat WWII US army jeeps.
  12. Wonko

    Oxalates may be a problem for people with M.E.

    So I'm not supposed to eat meat (environmental reasons), fish (overfishing), sugars (diabetes), carbs (turn into sugars), metals, anything with palm oil involved, and now plants. Rock salad surprise it is then.
  13. Wonko

    "Sitting up straight does not prevent or treat back pain, study finds"

    Has anyone considered pain killers to treat back pain? Slightly more expensive than sitting up straight, but, especially in light of this 'revelation' more effective in 'some' cases. I know, too out there, too unconventional for medicine to even consider.
  14. Wonko

    Mitochondrial bioenergetic deficits in C9orf72 amyotrophic lateral sclerosis motor neurons cause dysfunctional axonal homeostasis, Mehta et al, 2021

    T'was also on bbc news website earlier. Doesn't seem to be any more so obviously something more important, to the BBC, has replaced it, like Megan's latest hair style.
  15. Wonko

    The biology of coronavirus COVID-19 - including research and treatments

    That probably assumes two things 1. That this is what happened, that one shot of vaccine diminished the ability of the virus to kill her, that without it it would have done, and 2. That in a pandemic the main threat is from the virus. At least from my point of view the virus isn't the problem...
  16. Wonko

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    That probably assumes two things 1. That this is what happened, that one shot of vaccine diminished the ability of the virus to kill her, that without it it would have done, and 2. That in a pandemic the main threat is from the virus. At least from my point of view the virus isn't the problem...
  17. Wonko

    The biology of coronavirus COVID-19 - including research and treatments

    It may be that they, wrongly, feel that they are now out of danger, so their 'mood' has improved - they feel better as they feel less 'threatened'. They may also feel, wrongly, that as they now, wrongly, consider that they are out of danger, they can do whatever they like again. There are lots...
  18. Wonko

    PEM: Swimming compared to other activities?

    Doesn't sound like anything I remember :whistle:
  19. Wonko

    PEM: Swimming compared to other activities?

    Swimming pools tend to be loud, echoey, out of focus, cold, and wet. With random, yelling, moving, obstructions. As such it's not somewhere I would consider going, and haven't since I was a child (when in order to minimise the overload I used to spend a lot of time sitting on the bottom in the...
  20. Wonko

    Sleep trackers

    So no one else uses duvet disruption as an indicator? e.g. no movement, once the area lifted to get out of bed has been restored then it's as if no one had slept in the bed, or conversely, duvet shows evidence of having been rotated on a horizontal plane 180 degrees during the night - as...
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