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I can't speak for anyone else but I would not do this. Not without permission from your GP anyway. IMO it could easily be seen as theft, misrepresentation, medical fraud, etc.

I have seen reports of people catching covid after being vaccinated. Given the precision of such things, it seems possible that at least some of these cases were infected during the vaccination 'process' i.e. the trip to, the visit, and the trip back to home. Pretty sure I saw reports of a...

I'm sorry but I cannot agree with this statement. I also cannot disagree with it. Because I do not know what causes 'activity driven fatigue', in either long covid or pwME. Let alone if what cause it for 'most' people with long covid is the same as in pwME (also a very poorly defined set).

:hug::hug::hug:

I have the answer; It's because food exists. I start the day nauseous. I don't eat, only drink. After a few to several hours I eat, from that point on I get hungrier and hungrier, and by night time I am ravenous. It doesn't matter how much control I exert - and I exert quite a bit or I'd be...

I don't either. It took me many years to notice there was any pattern to PEM, and even then all I knew was that if I worked too hard I got ill, and non functional. I certainly didn't keep spreadsheets, or notes, or anything. It was just a thing that I eventually noticed happened. ...and a...

Possibly, in order to make sure this is a valid, fair and accurate comparison...........

Only one word of that description comes out my mind. It is what the often small hard seed casing of many trees are called. It is possible that my cognitively impaired PEM'd brain may have missed a word or 76 thousand, but that's the only one that seems to exist in my head. But if it was that...

So, if they admit to not having the info then the statement that pwME are not known to be more at risk, and therefore a priority, would seem to be 'misleading'. Given that they know they don;t have this information it might even IMO be classed as active 'disinformation'.

To use your analogy; what we have, over the last 30 years or so, is enough stales in the ground to lay out a reasonable sized town, but we still have no buildings, not even a single brick has been laid, all we have is 'stakes in the ground' - most of them so covered in vegetation/piles of crud...

They weren't tho were they. They weren't 'selected' and put on TV for any other reason than because of who they were. Because of their 'medical' positions. Mr J Giles of 56 Shorts Bridge Road, Clandidno wasn't put on - despite any symptoms or experience he might have had, were he not...

Of course the reported main side effects, nausea and diarrhea, don't affect appetite or weight at all.

It seems that when a patient (me) doesn't respond to a GP email within a week, current practice is to send round 2 large instances of plod, and a tiny amount/package of GP. So I had plod here, who TBF did disappear fairly rapidly once they determined I wasn't rotting above a certain threshold...

To a person who only has a hammer everything looks like a nail - or whatever the saying is. I was under the impression that one of the aims of primary school education was to teach people that even if they only have a hammer that other tools may in fact exist. But apparently Sir Prof SW (the...

Presumably that information is classified, at the highest level. If it wasn't then someone would know who to call to ask them why, and that would rather be against the charter of an organisation that was created as a 'hands off' erm...thingy....so that the government could disown all...

Presumably they are given to 'people' tho, and measurements can be taken as to how many of those people get ill or die - which as far as I know are the only things needed to work out how effective a vaccine is. Only real variable is the vaccine. If they start making it so that people have to...

Given the symptomatic similarities, and that people with ME aren't allowed to donate blood, is it entirely ethical, or sensible, to inject people with blood products derived from people with long covid? Just because a few treatments have historically been made this way, as attempts at a quick...

No, it appears to be health gospel - not to be questioned. To the extent that, as far as I know, all activity trackers (like garmins, fitbits etc) come with a move alert that goes off at intervals to 'remind' people that they haven't moved in x minutes - that then has to be turned off, as...

All I remembered from this thread was that stick type hoovers, the the motor at/near the top were reported to be easier to use and effectively lighter as the weight was closer. So I bought a Shark HZ500UK. This is a corded hoover, as the cordless version seemed to be around double the price...

"I did this by listening to people that have recovered from CFS/ME, not people that are still unwell". "We need to listen to communities of people who have recovered from illness, says Paul Garner" Do such communities exist, for long covid or for ME? 3 states; 'recovered', I would have...