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  1. Wonko

    BMJ: Activists demand more funds for ME research

    I can confirm that it is paywalled (or the BMJs version of it)
  2. Wonko

    Norway: Article about ME seminar with security

    https://www.merriam-webster.com/dictionary/antebellum Definition of antebellum : existing before a war Not sure if that's helpful.
  3. Wonko

    BBC Health: 'My illness is so rare it doesn't have a name' - new Welsh clinic for nameless conditions

    Also not surprising that the number of doctors who seem to think that something so small couldn't possibly have any effect appears to be so large. It's almost as if they didn't have any appreciation for y'know, cellular biology, of the type used by all multicellular life, on the planet.
  4. Wonko

    Covid-19 vaccination experiences

    About 2 hours ago I had a moderna jab (no idea currently if it was bivalent - wasn't mentioned being) and a flu jab. No significant side effects so far i.e. the initial side effects that happed within minutes of my other jabs have not happened. Of course, bad out of sync nights sleep, coupled...
  5. Wonko

    LC, ME/CFS, FM, APS: venous blood gases measurement for diagnostics of hypoxemia, hypoperfusion, hypercoagulability, microclots... 2021, Aguirre Chang

    Sounds interesting, but the opinion of someone who knows something about 'it' would be useful.
  6. Wonko

    Long Covid in the media and social media 2022

    There are perfectly good treatments for chronic fatigue, at least as far as I am aware - rest, and improvement in working/living conditions so that rest can actually be achieved without dire financial and social consequences. If fatigued - rest. Thing is no one seems to give any thought as to...
  7. Wonko

    United Kingdom - Thérèse Coffey appointed Secretary of State for Health and Social Care, Sept 2022

    I agree, and will say no more.....but a humorous picture, not of the relevant people.....or mentioning politics at all....... https://www.s4me.info/threads/humour-sarcasm-and-smarty-pants-observations.12003/page-20#post-442964
  8. Wonko

    These Doctors Admit They Don’t Want Patients With Disabilities, NYT

    So decrepit, overweight, not good at communicating, unfixable in 10 minutes - possibly not their favourite option then? Surprising. I thought, despite my aims otherwise, that I was a positive delight.
  9. Wonko

    News from Doctors with ME

    Presumably the same vested interests still exist tho - with a proven ability to manipulate the policies regarding pwME of the royal colleges? Unless these malign actors have been disproportionately impacted by LC, then I don't see how LC changes much.
  10. Wonko

    News from Doctors with ME

    Bolding mine These would be the very same royal colleges that made, so I am told, 2,500 pages of objections to the removal of GET as a 'treatment' for ME/CFS, while the very same people were saying that they didn't use GET anyway? Somehow, I can't see them being inclined to change, or be...
  11. Wonko

    Hypnosis and hypnotherapy (also Rapid Transformational Therapy)

    Interesting. Given that the method, one of many that all basically have the same message, says it works because changing the way people think can, apparently, change reality; How does it work on people who are too cold - should they believe they can afford to put the heating on, in short...
  12. Wonko

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    Probably, but then I always think that. It's only as high as it is coz someone anonymously donated $5k around the $12k mark - I only noticed coz I was watching at the time - 2 anonymous donations and it climbed by a little over $5k.
  13. Wonko

    Norway: Articles from TV2 about ME. Interviews with researchers as Fluge, Rekeland, Sommerfelt, Kielland and an interesting patient case

    Surely you're not suggesting palm reading is a valid way of obtaining medical information? :rofl:
  14. Wonko

    Risk factors for suicidal ideation in a chronic illness 2022 Elliott and Jason

    ...when cognitively impaired and likely in a state of PEM. No one seems to have mentioned the single biggest risk factor, the thing that all pwME considering suicide have in common; They are all alive, obviously the risk of suicidal ideation drops considerably, for that person, if this was not...
  15. Wonko

    Closed UK: DecodeME updates, was recruitment thread.

    Given the position of most GPs on the subject of ME, their implicit acceptance of a BPS position, why would they encourage what they believe are false illness beliefs by having such information available in their surgeries? Or by telling patients of their surgery that biological research, into...
  16. Wonko

    Long Covid in the media and social media 2022

    TBH many many people were out, drinking, eating, etc., not using computers, when the Y2K bug was supposed to hit. Most of the rest were probably watching TV. I of course could neither be bothered, afford to go out, nor see any point in celebrating a purely arbitrary non event. I was...
  17. Wonko

    Covid-19 vaccination experiences

    In the UK hitting medical staff is frowned upon, or so the media tells me.:giggle: We nominally have, and have had for many years, a 5-10 minute appointment slot, for GPs anyway. This makes going to see one pointless, at least for an autistic person, often even if it is for a simple one issue...
  18. Wonko

    Covid-19 vaccination experiences

    In the UK in the early 90s I was 'interviewed' by a GP, when I was looking for a better one in my area. I was told that they, the surgery, wouldn't allow me to register, as the costs of my investigations and treatment would be too high, relative to what the NHS would pay them, and that that was...
  19. Wonko

    Covid-19 vaccination experiences

    But surely almost all businesses do exactly the same thing - if there is likely to be too much business, to many customers, then they refuse to open in that area, preferring to open in area's with no custom, where people don't want their services/products? Surely. That's just the way all...
  20. Wonko

    Covid-19 vaccines and vaccinations

    Possibly, when at school, people shouldn't be told bare faced lies about such things? I was told that vaccines stop viruses from replicating (not directly, they setup the immune system so that it recognises them, eats them, and therefore, having been eaten, don't do so well at virus singles...
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