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    Do the poll! Are the NIH/CDC going to use the right definition of PEM in all their future research? Deadline 24 January

    They describe two symptom complexes, the one being more straightforward than the other. Logically, a patient could be diagnosed with both if they conform to both sets of criteria, but I suspect that PESF only occurs in more severe / advanced cases of the illness. So, what I'm saying is that...
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    Do the poll! Are the NIH/CDC going to use the right definition of PEM in all their future research? Deadline 24 January

    I really do wish that the term "Post-exertional Malaise" had not become the accepted language. Just like "CFS", it's not emotive enough and IMO, doesn't properly reflect what patients experience. Much better to use the term "Post-exertional Flare" (PEF) or "Post-extertional Symptom Flare"...
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    Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018

    This is why the work that David Tuller, Keith Geraghty and others are doing, in demonstrating the flaws in the supposed evidence base in favour of recommending CBT & GET is vitally important. There would be no argument with recommending these treatments if they were well-evidenced, but they...
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    Proposed Letter to NICE

    Well done @Graham. You've put together a good letter. I would, however, like to make a couple of points: 1. I would like to see highlighted, the fact that the particular brand of CBT advocated by the PACE trial crowd, is directive (hand in hand with GET) and therefore not of the supportive...
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    6&7 Nov: Cochrane wants patients' views in tweetchat to make 2018 conference relevant, accessible

    My reply: "Yes. @keithgeraghty from Manchester Uni would give a brilliant insight into how Cochrane has badly failed #mecfs patients."
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    6&7 Nov: Cochrane wants patients' views in tweetchat to make 2018 conference relevant, accessible

    My tweet: "#Cochraneforall Big need for open public debate about how purity of Cochrane is being compromised by vested interests / lack of impartiality"
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    6&7 Nov: Cochrane wants patients' views in tweetchat to make 2018 conference relevant, accessible

    Suggested this: "Adopt a theme relating to the rigorous application of the "Scientific Method" in any research for it 2 qualify for consideration by Cochrane"
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