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Re "Long term ME/CFS is recognised after EBV infection, but it may not be merely a longer version of a ‘PVFS’ category that does not include ‘crashes’ and sensitivity to light and sound." Is the first 'not' erroneous?

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I caught colds normally in my first few years of ME, then stopped. I think I had a case of COVID in 2021, but it only lasted a couple of days. Nothing since, except ME.

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Stone's site https://neurosymptoms.org/en/ used to feature a lot about ME, but seems to be all about 'FND' now.

Fortunately there is only one instance of 'CSF' instead of 'CFS'.

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I think there is an error here: It says: "25(OH)D supplementation influences the levels of serum lipids in that it lowers the levels of total cholesterol, triglycerides, and LDL-cholesterol and increases the levels of HDL-cholesterol, all of which are known risk factors for cardiovascular...

Don't assume that. I at least often don't have the time or brainpower to comment or even read things thoroughly!

Re 'I found myself signing deeply' do you mean sighing?

By the way, it's ME/CFS, not CSF - CSF usually stands for cerebrospinal fluid, whereas CFS is chronic fatigue syndrome.

I take something to help sleep every night, and I rotate it so that I don't take the same thing more than 3 days in a row. I take mainly over-the-counter antihistamines which have sleep-inducing properties, thus diphenhydramine, chlorphenamine and cetirizine, and promethazine on Saturdays...

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David Nutt has long been an advocate of psilocybin and other things. It would be good to see the whole paper. Ah - it can be accessed here: https://www.biorxiv.org/content/10.1101/2024.10.11.617955v1.full.pdf

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"Course sessions will cover: • relaxation techniques • dealing with difficult emotions • exercise and how to eat healthily • coping with depression • pain and fatigue management • planning for the future Online Free course Email cpn-tr.epp@nhs.net, call 07824 598 626 or leave a message at...

Interesting. My pupils definitely react more slowly to light and dark than normal, and I think they have since early on in the disease. Sometimes I have to wait for them to adjust, as I can't see otherwise!