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I have approx 3 days PEM, or rather 2 days, as the first day after the activity I feel OK. It starts on the second day after activity.

Yes, I do. Sometimes I'm really out of focus for a while, but it comes back, thank goodness.

In case anyone doesn't know, her husband is notorious ME-dismissing Professor Sir Simon Wesseley.

I hope I got this right - it was said at the end of this week's Sliced Bread programme, that: next week's programme will be about vagus nerve stimulators, including their use for fibromyalgia and 'chronic fatigue'. It's at 12.30 lunchtime on Thursday 15th May...

$61,212 raised, 90% of target 19 hours left (much easier to understand!) https://crowdfund.berkeley.edu/project/46120

Now $57,356, 84% of total. 1 day left (not sure what this is in UK time) https://crowdfund.berkeley.edu/project/46120

I didn't know what sundowning was so looked it up: "Sundowning, or sundown syndrome,[1] is a neurological phenomenon wherein people with delirium or some form of dementia experience increased confusion and restlessness beginning in the late afternoon and early evening. It is most commonly...

$44,627 raised, 65% of total. 4 days left. https://crowdfund.berkeley.edu/project/46120

I told him roughly what it is like, at least once, as he's my local MP. https://www.s4me.info/threads/uk-all-party-parliamentary-group-appg-on-me-news-2020-onward.16996/page-17#post-604847

Looks from a quick glance at the pdf that there were only 25 people being studied.

$39,733 raised, 58% of total, 8 days left. https://crowdfund.berkeley.edu/project/46120

I noticed the misspelling of 'opportunity' but not the missing word 'be' in 'there will an opportunty'. I also added Jo Platt's email address and the full spelling of ME as myalgic encephalomyelitis.

$36,790 raised, 54% of total. 9 days left. https://crowdfund.berkeley.edu/project/46120

I've sent the following: Dear Ben Maguire, I am writing to you as your constituent to urge you to join the APPG on ME (myalgic encephalomyelitis) and help fight for those like myself who are suffering from ME. The next meeting of the APPG will be held jointly with the APPG on Long Covid, on...

ME? Marathon????

$35,564 raised, 52% of total, 10 days left. https://crowdfund.berkeley.edu/project/46120

But mice only live for a couple of years.

Merged thread 'I went into hospital for four days and came out two years later (FND) Megan Dixon was 13 years old when she started feeling unwell. By 16, her health had deteriorated to such an extent that she was taken to hospital after losing the ability to speak. Doctors believed she may...

$20,073 raised so far, 29% of target, 19 days left. https://crowdfund.berkeley.edu/project/46120

I forgot to include the link last time: https://crowdfund.berkeley.edu/project/46120