Search results

  1. MeSci

    Brain fog poll

    Yes - I did both my Open University degrees when I had ME. It took me maybe twice as long, but I did well. That's before I suffered my worsening a few years ago.
  2. MeSci

    Brain fog poll

    I usually have it daily for several hours, then I'm reasonably OK, so none of the answers really apply. Unusually, today I have very little (compared with usual).
  3. MeSci

    DecodeME - UK ME/CFS DNA study underway

    I've had mine. For some reason I didn't receive the last one, so signed up again as instructed.
  4. MeSci

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Some? Rather an understatement!
  5. MeSci

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Just want to add, that for very seriously affected people, this will not be possible, and they will need someone to do it for them.
  6. MeSci

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Merged thread Long Covid: How knowledge of ME could help sufferers - BBC News Very annoying 'music' as so often with BBC videos, and featuring a young woman with lipstick and nail varnish. Summary: Long Covid: How knowledge of ME could help sufferers While both ME and long Covid, or...
  7. MeSci

    The biology of coronavirus COVID-19 - including research and treatments

    Here's the latest BBC online news: https://www.bbc.co.uk/news/uk-55021334
  8. MeSci

    BBC Radio programme on pain - includes fibromyalgia (13 November 2020)

    It was OK - they didn't feature the bloke who doesn't feel pain, but the video is available here: https://www.bbc.co.uk/programmes/w3cszv6m, and go down a bit.
  9. MeSci

    BBC Radio programme on pain - includes fibromyalgia (13 November 2020)

    I agree - there is a lot of crap in there! I'm going to listen anyway.
  10. MeSci

    Sleep meds poll

    That's one reason why I take them in sequence, then you can't get dependent. (I know about dependency - I got badly addicted to amphetamine - terrible time, lost my job, etc.)
  11. MeSci

    BBC Radio programme on pain - includes fibromyalgia (13 November 2020)

    Crowd Science on BBC World Service today is about pain. https://www.bbc.co.uk/programmes/w3cszv6m How can I beat pain? CrowdScience We all feel pain on a regular basis; when we stub a toe, break a bone or even experience heartbreak. Bebeto from Cameroon wants to know how to cope with a pain...
  12. MeSci

    Sleep meds poll

    I take medications for a maximum of 3 days in a row, and then switch to another. The ones I take are: Promethazine (sometimes) diphenhydramine cetirizine (antihistamine) chlorphenamine (antihistamine) paracetamol & codeine (usually only one nowadays as causes constipation) Sometimes they...
  13. MeSci

    The difficulties of conducting intervention trials for the treatment of [ME/CFS]: Expert testimony to NICE guidelines committee by Jonathan Edwards

    Thank you so much for such a detailed, informative, and very definitive, strongly-worded review, @Jonathan Edwards! I was especially pleased to see the inclusion of the paper co-authored by the sadly-late Robert Courtenay, aka @Bob. How I wish he were still here...:cry:
  14. MeSci

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I understood - just pointing out that noise in hospitals can be unbearable even for people without ME, or without severe ME. Apologies if I wasn't clear.
  15. MeSci

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I was in hospital a few years ago where the noise was so bad I literally felt like jumping out of the window (and it was probably high enough to be fatal if I had been able to). It consisted of various alarms, some going off completely unnecessarily, and I was not the only person to be...
  16. MeSci

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Is this a misprint or an Americanism? "the guidance will shift bit back"
  17. MeSci

    Anyone else in the U.K. had a letter about a covid testing study?

    Yes - the throat ones make me gag too, but apparently that means you're doing it right! If I don't gag, I keep going till I do. Ideally I gag twice to make sure.
  18. MeSci

    Anyone else in the U.K. had a letter about a covid testing study?

    I've now had another result, from 27th October - negative again. Don't know how accurate these self-taken swab tests are, of course.
Back
Top Bottom