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Women's Editor of the Male?!

He's not listed in the protocol, so maybe it's just that he works at the same uni and is involved with ME and Long Covid. I'd be quite surprised if he were involved in something like this.

'It's not a way to live': New study from Exeter team could offer hope for Long Covid sufferers My foggy brain seemed to deduce three main things from this news item: 1. A young woman called Amber Rawlinson has long COVID and is struggling with what sounds identical to ME. 2. Dr David Strain...

I think you've erroneously repeated 'ME/CFS' here. Should it be something else?

You've missed out the 'S' at the beginning of the title.

I produced too much urine from before 2000, and benefited greatly from desmopressin. Then, recently, a while after having had some dental work including the extraction of an infected tooth, I stopped needing it. My blood pressure also normalised, when I had been taking the beta blocker...

Bloody cruel and pointless like the vast majority of animal research.

I saw Prof Pinching in Cornwall in about 2000, at an ME clinic. He was good.

There is a discrepancy here: "5% had experienced mainly improvement. Only 1% reported mainly improvement."

Good luck with the surgery, @alex3619.

I hope this is the right place for this: Devon woman staging an exhibition to raise awareness of Functional Neurological Disorder https://www.itv.com/news/westcountry/2024-03-30/the-devon-woman-staging-an-exhibition-to-raise-awareness-of-rare-condition A Devon woman who was struck down with a...

In the case of cancer, particularly, could it not be due to the treatments? They are pretty horrible.

Just listened to BBC Radio 4 item on the microbiome in the programme Inside Science: https://www.bbc.co.uk/sounds/play/m001xmh7 Sounds like I'll give any testing a miss!

In case anyone wants to read another thread on gluten and ME, try this: https://www.s4me.info/threads/markers-of-non-coeliac-wheat-sensitivity-in-patients-with-myalgic-encephalomyelitis-chronic-fatigue-syndrome-2018-alaedini-et-al.3167/

Yes - I used to take it every month to celebrate the full moon (!), and experienced great reduction in anxiety and improved mood. I did sometimes get back pain, possibly due to impurities or deterioration in quality. I stopped taking it in the 1990s, I think. It was due to getting depressed...

I'm glad you can benefit from your e-bikes. I was intending to get one, with a trailer or similar to take my cat to the vet, for example. But since I worsened a few years ago I don't think I would be safe, especially with the increased traffic. I'm not even with-it enough to see the road...

This site gives a bit more info: https://nypost.com/2024/03/01/lifestyle/a-man-died-after-taking-vitamin-d-experts-warn-of-overdose-risk/ I took what I now strongly suspect was an excessively-strong Vitamin D supplement for a while before realising. Vitamin K doesn't seem to have agreed with...

Not sure if everyone knows this, but here is Jon Stone's weird website: https://neurosymptoms.org/en/

Just thought I'd post the reply to my comments, which came quite late: "Dear *, Thank you for your message and for accepting the invite to complete the 2nd questionnaire. Thank you too for your feedback, I will pass your comments on to the team. Unfortunately we cannot change the...

It's very well written and expressed. I've sadly had to drastically reduce the number of plants in my home, as I just can't look after them. But there are plenty outside. Although I have to keep the ones in my garden under a bit of control too! I would pay someone to do it, but have limited...