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  1. MeSci

    Crowdfunding for David Tuller starts October 1st 2024

    $14,701 raised, 21% of total, 110 donors 23 days left. https://crowdfund.berkeley.edu/project/43450
  2. MeSci

    Crowdfunding for David Tuller starts October 1st 2024

    $11,796 raised, 17% of total. 98 Donors 24 days left https://crowdfund.berkeley.edu/project/43450
  3. MeSci

    Was there a gap between trigger and onset of your ME/CFS?

    I can't answer because I became ill in 1995 and was concentating too hard on trying (unsuccessfully) to find my disappeared cat to think of myself much.
  4. MeSci

    Crowdfunding for David Tuller starts October 1st 2024

    $4,020 raised, 6% of $67,000 Goal 54 Donors https://crowdfund.berkeley.edu/project/43450
  5. MeSci

    Crowdfunding for David Tuller starts October 1st 2024

    $2,900 raised so far, 4% of total https://crowdfund.berkeley.edu/project/43450
  6. MeSci

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Do you know who wrote that?
  7. MeSci

    Hypothesis Disorders of gut–brain interaction through the lens of polyvagal theory 2024 Porges

    Looks interesting from a quick look, but I'm rather puzzled by the reference at the end to 'United States Association for Body Psychotherapy'. Also supported by the Chaja Foundation. ???
  8. MeSci

    Needing to lie flat

    I don't get much muscle pain, but otherwise I am similar to you - very rarely need to lie down. I don't think I have orthostatic intolerance. My legs get tired below the knees. I also have difficulty standing still - have to keep moving my weight from one leg to the other, so queues are a...
  9. MeSci

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Merged thread BBC Radio 4 programme featuring 'Functional Neurological Disorder' (FND) I haven't listened to this yet, but can be fairly confident that it will be a load of cr*p, knowing Claudia Hammond's views/approach: "All in the Mind FND - the most common disorder you’ve probably never...
  10. MeSci

    Letter in The Times (London) on assisted dying and ME

    "Melanie Phillips’s intelligent article" Really? Is that the Melanie Phillips whose extreme, often-garbled nonsense used to feature on Radio 4's Moral Maze? I don't know if it still does, as I gave up listening years ago largely due to her.
  11. MeSci

    Review Acupuncture and moxibustion for chronic fatigue syndrome: A systematic review and network meta-analysis, 2022, Fang et al

    I had no idea what moxibustion was, so looked it up: https://en.wikipedia.org/wiki/Moxibustion
  12. MeSci

    The Chronic Elephant blog by hellytheelephant

    I was fine with morphine which I took (illegally) for agonising wisdom tooth pain which the official doctors wouldn't give me anything strong enough for.
  13. MeSci

    Inflammation May Be the Root of Our Maladies

    I thought that dilatation was widening rather than redness?
  14. MeSci

    The Chronic Elephant blog by hellytheelephant

    I took heroin once and it made me throw up for 8 hours. No pleasure at all, so never tried it again!
  15. MeSci

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    This does not make sense: adults who have been diagnosed with ME/CFS and also people with ME/CFS triggered by a covid infection. They are all people with ME/CFS! Also, in the second example it doesn't state whether they need to be adults.
  16. MeSci

    Is tinnitus an ME symptom? - Discussion of evidence

    I used to get a lot of tinnitus and deafness, but I think it was due to scratching and trying to clean out my ears with various things. They tended to itch a lot in the summer. Sometimes I went completely deaf until the ears were eventually unblocked. I couldn't even use the phone.
  17. MeSci

    Open Letter to the British Paralympic Association About the Need for a Caveat

    The petition/open letter is here: https://openletter.earth/open-letter-to-the-british-paralympic-association-about-the-need-for-a-caveat-fcfde578
  18. MeSci

    Wildflower Wisdoms™ Living ME Magazine

    I just listened to the video of the woman who set it up, and am concerned that the only option under "This website uses cookies" is to accept. I didn't accept.
  19. MeSci

    University of Edinburgh - ME/CFS research fundraising

    There should be more info on the page.
  20. MeSci

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    https://www.bbc.co.uk/news/articles/cy0rwzd0r1do By Lili Sheppard BBC News, Somerset Published 7 hours ago An ex-nurse is attempting to set a new world record by travelling from John O’Groats to Land's End in 45 days using a standard wheelchair. Army veteran Lexi Chambers has fibromyalgia...
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