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No personal stories, please! :) I'm looking for research findings on what percentage of people diagnosed with ME/CFS probably don't actually have it. Do we know?

Apart from these flashcards, have you seen our charities/organisations/allies produce anything useful for medical education? If they haven't, what sort of stuff is useful in medical education (flashcards, anything else) that could potentially be produced on the forum, maybe as part of the...

Is the ME/CFS, POTS, MCAS, hEDS, chronic Lyme question worrying? I don't know what answer they were giving for it.

It's so infuriating! This is exactly the sort of clear demolition of stupid, damaging rubbish that we want. :arghh:

So if someone can get a critical article into what appears to be a key journal in their field, sticking the boot into the standard treatment, why can't we? Is it that tilt-table testing doesn't have powerful vested interests controlling the journals?

I agree, this is pretty good, though with some inaccuracies. I particularly enjoyed the boot being stuck into PACE.

That's a very good idea. Depending on how you did it, you might even be able to just record yourself on Zoom. I'm sure the forum is full of people who know how to do all this stuff.

When I was still able to sit somewhat during car journeys I used to sit in the front passenger seat and bring a squashy pouffe from my house and put it in the footwell so I could have my feet raised, because tilting the seat back meant my legs were still too low relative to the rest of me to...

I'll add a note about safety to my original post. I agree it's not ideal.

It's a while since I've done it but IIRC, I use both seatbelts on the back seat and insert my upper body through one and my legs through the other. I'm not sure if that's a very helpful description but I don't think I can do better!

I've had to lie down in the back of a car seat for journeys and asked my GP to provide a seatbelt exemption certificate (I'm in the UK - here is the UK government info page about them). Even so, while I'm lying down I put seatbelts across my body as best I'm able because if the car crashes, I...