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Not the right way to look at success IMO. This is the equivalent to h-index and other citation metrics but for unis.

A bit late, but I had forgotten to share and thought it was cool. (Photos taken from SGME newsletter). 30 Buildings and similar were lit up blue for #LightUpTheNight4ME Even the hospital in Neuchatel

Thought figure 1 was pretty decent at explaining the heterogeneity. Even if I might not completely agree with some of how it’s presented. Much better than the long COVID is one illness thing. In general, this paper may not go far enough, but reading it feels like a breath of fresh air because...

If uses proper methodology. IIRC her team has had a history of spinning negative results as positive so not holding my breath.

To be honest I’m glad most of the money won’t go to treatments just yet. IMO if something like RECOVER spent anywhere near the amount they spent on clinical trials on large sample size well done basic bio research and replication the field would be further along. I understand the concern of...

Prophetic

Agreed but its not necessarily something that they can solve. If their university doesnt do ethics approvals properly.

I mostly agree. But to be fair they aren’t asking for your whole genome just two SNPs and their document seemed to have a decent privacy protocol. I agree their university should have an ethics board approving this kind of stuff but it doesnt sound like its common practice there (which is...

I think you’ll find people on the forum who will. We tend to be a bit critical but I think that’s helpful in the long run to improve quality of research :). Negative results are very valuable as well. And someone who pursues a theory not to get another grant but to actually try figure out the...

Out of curiousty do you take GWAS data or only WGS?

The only acceptable evidence for this should be longitudinal. Because as any serious person should figure out becoming chronically ill will change your “psychology”/“beliefs”. So without longitudinal studies you’ll just be taking how ill people think and saying that causes their illness which...

Seems to work for me. Seems to be psychology PhD/Masters dissertation.

So basically every single illness that has a significant burden and isn’t a quick fix??

Interesting. I don’t want to give out personal medical info. So I’ll keep this anonymous. But Person X who is close to me. They have hypermobility + lots of long term disabling symptoms. That in my opinion look quite like mild ME. Especially “PEM” type cycles (whenever they do too much they end...

In Vienna in 2022. I had both private (university provided) health insurance and was in an urban place. Yet I meandered through probably what 10 doctors telling them I felt awful since COVID infection and none of them suggested Post-COVID. In fact those who I asked about it told me that it’s...

I remember we once had the genius idea of walking around Dubai when we had a short layover in summer. Just kind of took a taxi a km to the middle of unwalkable hell. It was probably nearing 40 C with high humidity and even just walking a km or two we started feeling super horrid. Seeing the...

The problem is most recovered patients are constantly told by our oppressors that they must have done things “right” or believed the “right thing”. So obviously many will start to believe that over time because its a flattering narrative and they don’t hear it challenged. It’s also an effective...

Word on Bluesky is that this book is stigmatising and promotes the GET/FND view

And those who are too severe to avoid mentioning it tend to be too severe to have much contact with the medical system outside their GP