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  1. M

    DecodeME in the media

    Yes, that's it. Good job transcribing that, I tried to last night but just wasn't able to. I noticed that about Adam Boulton but you're probably right, and also sometimes they want to cover a news story but don't have time for comments from both on the panel, and this was an unusually...
  2. M

    Criticisms of DecodeME in the media - and responses to the criticisms

    @Joan Crawford I've found the sky press review from last night on Youtube - it was Psychotherapist and Broadcaster Lucy Beresford - https://www.lucyberesford.com/ Only the first half of last nights extended 1hr show (focussing on Ukraine and Gaza) is available on their Youtube. The second...
  3. M

    Criticisms of DecodeME in the media - and responses to the criticisms

    She's one of their usual contributors in their 10.30 p.m. tomorrow newspaper review every night, not brought in specially. For the life of me I can't remember her name, even though I watched the repeat specifically to make a note of it! Here's where I think she got the impression from...
  4. M

    Criticisms of DecodeME in the media - and responses to the criticisms

    Thanks for clarifying that @Simon M. I went in search the possible source of her comments (she was a pscyhotherapist, not psychologist as I incorrectly stated. I think this is where she got her information from; Reuters...
  5. M

    Criticisms of DecodeME in the media - and responses to the criticisms

    Being covered on Sky news now. Only the Psychologist on the panel was asked to comment. She stated that what people are pointing out is that many of the participants in the study had 'self reported diagnosis'. Am I correct in recalling that only those with a medically confirmed diagnosis...
  6. M

    DecodeME in the media

    Me too. :hug:
  7. M

    Criticisms of DecodeME in the media - and responses to the criticisms

    I was reading only today somewhere on the forum, can't remember where now, an article about the long term chronic illness in patients following the 1918 Flu pandemic, a study in Africa, during the years following that pandemic. The article was comparing situation with Long Covid I think back in...
  8. M

    DecodeME in the media

    Here's part of the Channel 4 News item tonight for those who missed it. A personal visit from the Professor.
  9. M

    Closed UK: DecodeME updates, was recruitment thread.

    Really appreciate the heads up, and eternally grateful to all the team @Andy regardless of the results. I'd like them to know that from my perspective, they have been part something more than research. They have played a significant role in restoring a sense of humanity to me. It's hard...
  10. M

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Yes. Cochrane's republishing of the review with the 2024 date coincides with the (3 days before or after) coroner's 56 day deadline to respond the PFD Report on Maeve Boothby O'Neill. Although not a recipient of the PFD, this inexplicable event landed within the same timeframe. This follows...
  11. M

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    Thanks for that @MeSci, I really appreciate your effort. It's more the approach, tone and direction I'm asking about. I'm I'm gong to get my carer to read through the final covering letter and the detailed complaint for those type of errors such as 'wasn't instead of 'was', I spotted that one...
  12. M

    The HERITAGE study (Health Effects fRom Infection sequelae: Tailoring services and Advancing GuidancE)

    The HERITAGE programme is nothing but a cost saving exercise, writing a new National Service plan and education materials. This man is an Emeritus Senior Investigator at the NIHR. Professor Sir Simon Wessely GBE | NIHR [accessed 30 July 2025] I rest my case.
  13. M

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    Hi all, long time no see due to very severe ME. Saw plan and in the middle of preparing my own response. It's another formal complaint to the Minister DHSC - with teeth. Here's the current draft of the covering letter to the 22 page detailed complaint which I'm finalising. The covering...
  14. M

    Maeve Boothby O'Neill - articles about her life, death and inquest

    The above contains the text of my complaint, the same day the Regulation 28 Prevention of Future Deaths report was issued following the Inquest into the death of Maeve Boothby O'Neill. This following is copied from...
  15. M

    Clare Gerada: influence on UK medical practice and ME/CFS management

    Ring fencing of funds for healthcare is being removed, with only ring fencing for mental health to remain in the new NHS 2025/2026 priorities and planning guidance. 2025/26 priorities and operational planning guidance There has been some reaction against this, among which is from the King's...
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