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Yes, I've still got DecodeME in my head, I was that sort of technical. Thanks so much, I very grateful will message you.

I agree.

Suddenly, after all this time since 7 October 2024! Please note: This is NOT part of the public consultation process, although it is designed to look the same. That is officially closed. It is therefore research in this context, into a group of patients where there are significant...

Thanks @hotblack and @Wits_End. I wouldn't want anyone spending on it so I guess, not the first option. It's not a technical discussion - BPS. With better quality translation to English than google would be ideal, I was just trying to make it easy as poss for people. Good enough will do -...

That's because it is, deliberately.

Some good work going on here. Last time I was on the forum it was at the discussion stage about producing Factsheets. Now I see the project's begun and are being translated. :thumbup: I don't want to impact on what's going on here. Is there anyone else on the forum who would either...

The Patient Safety Learning Hub also posted it on their site yesterday afternoon https://www.pslhub.org/blogs/entry/8850-as-my-daughter-died-of-me-the-state-met-in-secret-to-blame-me/

Let's just say it wasn't a walk in the park. I'm more like one of the Rasta octopus in Shark's Tale - 'dat's not de way ya play dat tune man!' (Big Marley Fan) I've collected the relevant evidence supporting the complaint that I'm struggling to draft at the moment, due to cognitive issues...

In unity with Maeve and her family, by way of support, I share my 'experience' of ME/CFS. It highlights the same themes. It was only when updating my knowledge of FII, FDIA that I realised that my medical records are also likely to contain some reference of both FII, and also FDIA (the latter...

I've just been able to read the full Times Article. Let Justice Arise Poet: Catherine Pulsifer In the stillness of truth, let justice arise, With eyes that see beyond biased disguise. For each soul, regardless of birth or faith, Deserves an equal measure, a fair wraith. Be it woman or man...

Yes I remember that one well. The South West Paediatric Society and Crawley was to be the speaker. Didn't they apologize after a deluge of 'vexatious' complaints? . I noticed today that parents raising vexatious complaints to doctors is now an FII 'alerting sign' and that any one of the...

Moved discussion and just to add belt and braces to it, this from Table 1 of the RCPCH ‘Fabricated or Induced Illness by Carers: A practical guide for paediatricians’ – last published in 2009. Updated February 2021 - is wrong then?

Hi @Tree , thanks, and you. Better, following a 6 month crash after working on my 1st complaint to the DHSC on publication of the consultation responses at the end of last year. No screen time at all. Returned to my baseline severe about a month ago, then the Final Delivery Plan dropped. So...

I can't see the comments, but I can imagine. Sounds like panic. They need to be careful they don't make themselves extremely tired...

Thanks very much. Yes, Sophia Mirza and her mother went through something similar in 2003, and goodness knows how many before or since. This has left me actually speechless.

The pain is keeping me awake so thought I'd catch up with the media on DecodeME and this is the first thing I saw! WTF! I'm so out of date with the detail of what's going on with the cyp in this area. Can anyone direct me to a link to the investigation referred to in the article please, or...

I've gone through the last few pages of comments mainly focussing on the Reuters and Newsweek media reports with particular regard to Wessely's response regarding anxiety and depression, and genetic results. In the forefront of my mind is the current 56 day period for DHSC to respond to the...

@bobbler managed to find it. I could only find the first half hour of the 11pm of the extended press review which covered Ukraine and Gaza, on the Sky press review on their YouTube channel. She transcribed from what she found online.

@Trish I'm not sure that this piece in Newsweek, which I think is a US publication, has been posted already? A lot of quotes from Prof Chris Ponting, Prof Juilia Newton, Dr Anthony Komaroff and Simon Wessely. https://www.newsweek.com/genetics-chronic-fatigue-syndrome-link-study-2110090

I've now finished my research following that Sky Press Review last night and the Reuters piece on DecodeME. This is from Lucy Beresfords's website: https://www.lucyberesford.com/psychotherapywalkingtherapy Trigger words used here 'anxiety' and 'burnout'. Burnout still being used around the...