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  1. M

    UK: Collecting evidence on problematic UK approaches to ME/CFS and Long Covid

    This happened at the Bath clinic 10 years ago, sometime between 2012 and early 2014, when they began helping cancer patients managing fatigue.
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    Review Neurasthenia as a model of a disease thought to have disappeared. On an unpublished letter by Jean-Martin Charcot, 2024, Pérez Martínez

    :) with the knock on effects to the DWP and lost tax revenue? Stratospheric costs. It's clearly one of the reasons why the 2001 Woodstock Malingerer's conference happened. Just a shame they didn't spend more on biomedical research isn't it. It's one of the things the Private Members Bill...
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    Review Neurasthenia as a model of a disease thought to have disappeared. On an unpublished letter by Jean-Martin Charcot, 2024, Pérez Martínez

    Fact: what other illness can you think of, which requires a Private Members Bill being given permission to be laid before Parliament, to get it and the medical profession to acknowledge that the illness has been recorded by the world Health Organisation as a neurological illness since 1969? I...
  4. M

    UK RCGP helps with supportive LC leaflet for GPs

    'Sleep hygiene' I suspect. It's what they taught in Bath back in 2011 and still teach today, including the activity management etc and mindfulness. I'm not a bit surprised that this has been endorsed by the RCGP and being distributed by NHSE. Long Covid patients haven't yet acquired the...
  5. M

    Review Neurasthenia as a model of a disease thought to have disappeared. On an unpublished letter by Jean-Martin Charcot, 2024, Pérez Martínez

    Only need to look at 1988 I've copied and pasted this from my legal research file: Myalgic Encephalomyelitis (Hansard, 23 February 1988) (parliament.uk) (23 Feb 1988) Private Member’s Bill asking the House to acknowledge the clinical illness known as Myalgic Encehalomyelitis with with annual...
  6. M

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Look at this from that paper: "However, it seems likely that any harm reported from patient community surveys reflects poorly implemented therapy, as well as possible misdiagnosis of CFS/ME.31, reference 31 is this paper Use of an online survey to explore positive and negative outcomes of...
  7. M

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Can you remember where he said that? Link required for evidence.
  8. M

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Yes and here is the safeguard Rehabilitation (who.int) "Misconceptions about rehabilitation Rehabilitation is not only for people with disabilities or long-term or physical impairments. Rather, rehabilitation is an essential health service for anyone with an acute or chronic health condition...
  9. M

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Ahhh I seee. :facepalm: I finally get what you're saying, sorry I made you work so hard in explaining @JemPD :) Thanks.
  10. M

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Exactly, I've learned to always look for where, when as well as what is being said.
  11. M

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I see what you're saying, but I've only today caught up with this aspect and the White paper etc., as my own review of PIP has been extended because of the backlog the DWP have. I've just re-read the white paper and it introduces the new SDG as one group specifically for those with severe...
  12. M

    Persistent physical symptoms after COVID-19 infection and the risk of Somatic Symptom Disorder 2023 Horn et al

    And this is where SSD ends up a year later in the UK UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)
  13. M

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    This is an outrageous denial of basic human rights and is in direct contravention on the UN Convention on the rights of disabled persons! from the government page on severe disabiity group test information for clinicians: "Syndromes characterised by chronic pain and fatigue syndromes...
  14. M

    United Kingdom: Science Media Centre (including Fiona Fox)

    Last two pieces and then that's me for the day. 3 months after the Chief Medical Officer's report on CFS/ME in January 2002, this debate took place in the House of Lords on 16 April 2002 Lords Hansard text for 16 Apr 2002 (220416-19) (parliament.uk) "The Countess of Mar rose to ask Her...
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    United Kingdom: Science Media Centre (including Fiona Fox)

    There's this open letter from the Countess of Marr in December 2012 Open letter from The Countess of Mar to Professor Simon Wessely | 4 December 2012 - The ME Association A couple of months after Wessely was awarded the John Maddox price for 'courage' in standing up for science. At the...
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    United Kingdom: Science Media Centre (including Fiona Fox)

    There's this published by the SMC publications for scientists | Science Media Centre second document down under title "Advice for Researchers experiecing harrassment" the download is a 2019 document. "All researchers should expect their work to be scrutinised by the public, policy makers and...
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