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@Peter Trewhitt everybody's contribution towards the science discussions, treatments, the documents they've shared, their own individual area of reasearch and expertise, their opinions, and their experiences, the journalist exposes, the experts in different fields, have helped me focus my...

We hear you @Alis This has been my last straw. I'm taking formal legal advice this week. Will update forum in due course. I have both a social services care plan for the ME and also a CPA because I was sectioned. Under the new NHS Long Term plan these can be merged. I now know why social...

Evidence of ACT in use : Qualitative study of the acceptability and feasibility of acceptance and commitment therapy for adolescents with chronic fatigue syndrome (bmj.com)

Exactly @NelliePledge I have a social care, care plan that does that. But what you are agreeing with the GP is also a treatment plan. Imagine they're treating us with a blood therapy and while the drip is in our arm and the plasma is flowing they're sat in front of you negotiating your...

Nailed it @Jonathan Edwards . It looks and sounds to me like it's an encroachment into the NHS requirement to provide a care plan for a patient with any chronic illness or condition has and for that patient to have a copy of it, as was also a requirement in the 2007 Guideline, I believe if...

As a result of the CMO's report in 2002, the government of the day funded new England-wide specialist CFS/ME Clinics to the tune of £8.5m. Multi-disciplinary HCPs but those were: " physicians, dietitians, occupational therapists, physiotherapists and psychologists." Page 2 point 3 of this...

Wouldn't it.

My point exactly. If you get a chance and are up to it, listen to the podcast in @Dolphin 's post today. Nancy Klimas is interviewed, but the podcasters chat about how they are with their Long Covid before that. All the tests and referrals they've had. Health inequality is an issue. I...

Are ME/CFS patients still banned? You used to be able to check on the illness list.

Yup, that's better.

I didn't appreciate this article at all. Perhaps The Canary could find the time to listen to this, if they haven't already. Anaesthesia on Air / The perioperative management of patients with ME and Long COVID (audioboom.com) with Dr Shepperd MEA and Helen Baxter 25% Group working...

Oh they can definitely be sued, it's highly doubtful that anyone has given informed consent, but if they weren't harmed by treatment, then there has been no medical negligence in terms of treatment. However, if you were harmed by treatment, then a potential claim in tort exists. That's the...

This analysis of one interview is too much: One of the other big things is also getting friends and family and work to understand what's wrong with you [mmm]. You feel, I’ve felt many times that I'm just a fraud [mmm] and that I'm just er, work shy, lazy, hypochondriac (S10 048). The lack of...

I'll have a stab at translating: biographical, meaning - the story of a person's life repair, meaning - restore (something damaged, faulty, or worn) to a good condition: from the paper - "in which identity is reconstructed and a new normality is restored" Sort your beliefs emotions and...

Oh they've updated it alright, this whole page is a masterclass in deception : "Incremental physical activity has also been shown to improve muscle strength, cardiovascular endurance and symptoms in a wide variety of conditions that have chronic fatigue as a symptom, such as heart disease...

:)

I question how they're doing their reflective practice. Everyone has become so used to thinking of patients in a discriminatory, dismissive, and derogatory way, that in their minds it might be a given that success proves their theories, and those that are harmed are not their fault anyway...

World Health Organisation: Patient Safety 18 Apr 2024 - WHO launches first ever Patient Safety Rights Charter “Patient safety speaks to the first, fundamental principle of health care – ‘Do no harm’. Assuring patient safety is a global priority, and a critical component needed to achieve the...

Apart from the obvious ethical problem of providing an entire service based on a single Trial which has been internationally debunked (the fact that it has still not be retracted is in itself a cause of iatrogenic harm as evidenced in this thread, ongoing), why are they unable to rely on their...

WOW :jawdrop: One word in these three sentences on this thread in particular, combined with watching other discussions recently, has led me to what I believe is the last link in the chain that are the events of 2023 - which explain the situation we are now in. That word is 'code'. It impacts...