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This is interesting: "Why the left ear only? STAT is designed only for the left ear, because the human body is not symmetrical and we’ve found the Left External Carotid Artery is a better representation of the total blood flow going to your head." I wonder if that in any way could have some...

@Binkie4 I guess they were trying to tie in with 12th May and maybe that was the only slot they could get before the actual day. I got the impression that although the MPs where there, 7 or 8 I think, told their own constituents stories which did show all the relevant areas of concern. I...

This was a Westminster Hall debate. We operate open transparent government in the UK. Whenever there is a debate anywhere in parliament, and a briefing/debate pack is provided for MPs, and they quote statistics and figures in the debate, the briefing where this information has come from is...

Current MDU advice on the question of 'best interests' of patient. How to assess best interests - The MDU

Patients being treated with a therapy are protected by the Health and Social Care Act 2008 (Regulated Activities) Regulations 2014 which is enforced by the CQC. These not only include human rights protection, but also cover the procedure to be followed by HCP when harm has occurred...

One more, this is the medical defence unions advice regarding obtaining consent since Montgomery v. Lanarkshire Healthboard. Montgomery and informed consent - The MDU

Finally, this from 2018 prior to the case report and the systemic review of evidence referred to above. Understanding the Lightning Process Approach to CFS/ME; a Review of the Disease Process and the Approach (jep.ro)

This is what his approach is to the NICE Guideline. His website does not include the response from NICE so no, informed consent cannot be given unless he specifically mentions it prior to payment of his exhorbitant fees. NICE guidelines for ME/CFS 2021 and the Lightning Process - The Lightning...

I suppose you've got this already. A systematic review of the evidence base for the Lightning Process - ScienceDirect and this The novel application of the Lightning Process to treat Long COVID in primary care - Case report - PubMed (nih.gov)

Perhaps the most relevant point.

Secondary Polycythaemia of 'unknown' origin is my diagnosis subsequent to a CFS diagnosis by about 6 years. Apparently my haematologist didn't think it was connected with my severe ME. I got that smile, you know the one. Exercise intolerance, fatigue, cognitive difficulties etc. Secondary...

I can't see anything new. Consent doesn't need to be a signed document. For example, when the community nurse visits me at home to take bloods, I've already been contacted by the the surgery and the GP has explained to me why they want to take blood samples. The fact that I let her in and...

Some days when it's hard stringing a sentence together I let songs speak for me, big shout out to the DecodeME team working incredibly hard, with appreciation and thanks. Clean Bandit - Rather Be (feat. Jess Glynne) (Radio 1's Big Weekend 2014) - YouTube

:rofl: You could just as well have been speaking in alien tongues for all the sense that made to me until - I reached the phrase "The belief that set P is the universe is a problem" that I got it. :rofl:

Exactly! Trial By Error: Will MAGENTA's Null Results Finally End Professor Crawley's Long 'Reign of Error'? | Virology Blog MAGENTA Trial: GET is not an effective treatment for ME/CFS - The ME Association In the trial publication it is suggested that the reason for it may be that a longer...

This. It's akin to saying to a child who wants to pick up a spider, don't worry it won't hurt you. For the most part that's probably true. However, when you pick up a banana beware the Brazilian Wandering Spider. 9 of the World’s Deadliest Spiders | Britannica Since we are supposed to...

Awww heck @Evergreen yes it does. I was 'actively' avoiding reading through those weighty tomes, just not within my cognitive capabilities. For example, this quote: "Faculty of Sport and Exercise Medicine (UK) “Fundamentally, this guidance abandons the first principles of rehabilitation and...

Fascinating. Can anyone let me know whether chronic fatigue syndrome and/or ME is listed under a Specialty in the ICD11?

Thank you that's really useful information.

That's certainly how children, students in college and university will view it. It's how I viewed it as a 40 something adult. Your points about pacing are fundamental to the debate. In this article from the MEA following the publication of the new NICE guidelines the understanding was...