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In Bath between 2011 and 2014 the CFS/ME Clinic that I attended changed it's name to the 'Fatigue Clinic' which Nickie Catchpool explained to me was because they now helped Cancer patients to cope with fatigue and pain. Here's your links Occupational Aspects of the Management of Chronic...

This is while the MAGENTA trail was still ongoing. It's also the figure quoted to me in the adult Bath clinic in 2011.

NHS Centre for Integrative Care - NHSGGC concentrates on integrated care for long term conditions, which of course includes ME/CFS Under the tab Mindfulness and Meditation you'll find the only scan we'll ever receive. I can't even spare the energy to look up what 'Mistletoe Therapy' is.

Symptom criteria From the Kansas GWI paper (Steele 2000) research criteria Prevalence and patterns of Gulf War illness in Kansas veterans: association of symptoms with characteristics of person, place, and time of military service - PubMed (nih.gov) which is referred in the 2024 study...

:rofl: 'neurobollocks' :rofl: High five to Prof Nord. I hope that word makes it into the Oxford dictionary this year! This is basically 'mindfulness' in a CFS/ME Clinic in 2011 in the South West, but without the A3 sheet of paper. You can see now why Crawley did the Lightening Process...

Autoimmune Encephalitis - Overlap of symptoms with psychiatric diseases | Science for ME (s4me.info)

Autoimmune Encephalitis and Autoantibodies: A Review of Clinical Implications | The Journal of Applied Laboratory Medicine | Oxford Academic (oup.com) 5 Jan 2022

Lot of research going on in Spain on autoimmune encephalitis USA based Encephalitis | National Institute of Neurological Disorders and Stroke (nih.gov) UK based (the problem the UK has is that the UK do no tests except basic and that is by design) About Encephalitis - Encephalitis...

In advance of the final report of the Infected Bloods Inquiry tomorrow, Monday 20 May, the NHS E-learning for patients/carer only, is up and running from 15 May 2024. Two further sections are to be added for healthcare professionals only access. This was part of the Interim Delivery Plan...

Anyone changed their passwords lately?

Ren did this Patience (youtube.com)

And MAGENTA Trial published 2 March 2024 for CYP Graded exercise therapy compared to activity management for paediatric chronic fatigue syndrome/myalgic encephalomyelitis: pragmatic randomized controlled trial | European Journal of Pediatrics (springer.com) referencing Cochrane review in...

WHO have stated globally its approach to rehabilitation as it is to be applied to post COVID-19. The 2020 version is not so detailed on post COVID-19 rehabilitation as this 2023 one is. It cites the Cochrane review as the basis for some of it's decisions. WHO are therefore, the higher...

Regarding the Youtube video today explaining the problems with the PACE trial - Trudie Chalder certainly isn't stupid. Below are snapshots of the timeline I'm just trying to finish from the first part of 2015, just before David Tuller published his first triology of 'Trial by Error' and the...

Great news. :) I've already formulated a legal argument to force government directed and arm's length funding to address shall we say, disparity. I'll know the answer to whether that is feasible, and the appropriate mechanism by the end of this month.

This document probably needs it's own thread, but I'm crashing very badly and this is all I can manage to do, sorry. I suspect this is the real reason the October 2019 Cochrane Review cannot now be withdrawn. A higher authority. A change in the order of three little words and the whole...

Speech isn't free, the right to freedom of expression is subject to duties and responsibilities. 5 April 2023 Adil v. GMC High Court Judgment Template (judiciary.uk) A brief summary can be found here: Covid and Free Speech in the High Court - UK Human Rights Blog Full text of Article 10 of...

Done :thumbup:

I don't know what to say @John_Lobb except thank you so much. Absolutely perfect! ICD-11 for Mortality and Morbidity Statistics (who.int) For 12 years I've been following 3 separate lines of investigation outside of ME/CFS to establish breaches of Article 12 right to health, by denying...

Would this also be useful for patients who have not been tested for OI but still have problems with blood flow to the brain due to excess red blood cells and increased viscosity, and therefore exhibit similar symptoms as OI. Such as: Secondary Polycythemia Associated with COVID-19 Is...