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Or, if you liked it, a thumbs up ;)

When does this happen? I didn’t see any mention of psychological stuff in episodes 1 or 2,it would be a shame if the tone changed after this. Edit: Have now watched a couple more episodes - there are some dissenting voices being thrown in but I can’t help but feel that it’s the documentary’s...

Watched the first episode too. Very good, non judgemental filmmaking. Pretty much everyone I speak to who also has ME is higher functioning than me...to see Jamison was sobering. I also thought the couple trying to pursue mold treatment were really sweet.

SIBO (Small Intestine Bacterial Overgrowth) seems to be popping up on a few threads recently so I thought I’d start a poll about the prevalence among S4ME users. I suspect that it’s likely going to be a fairly low amount of people who answer yes to this, particularly as in the UK it’s...

I didn’t particularly take to the article but it’s good to hear a snapshot of what it’s like in South Africa. We rarely get to hear anything that isn’t US/UK/Australia-based.

I think this articulates a lot of good points. We do seem to tear each other down a fair bit, more than other patients communities. I didn’t interpret anything untoward in what he said. I’m not sure why there often seems a need to be relentlessly puritan about this kind of stuff. Every patient...

This will just be a cosy love-in. A shame, I loved Henry Marsh’s books.

Agree, I think that there shouldn’t be any ambiguity about this sort of stuff :thumbup:

I think all that’s listed is other syndromes. The majority of people with an ME diagnosis in my support group will also have one of the following: POTS, EDS, or some level of mast cell/histamine issues. Unscientific, obviously, but I wouldn’t be surprised if this was the case for the patient...

KDM seems to claim once per year that he’s found ‘the answer’.

Thanks for the info! Yes I’m going through my own high reactivity phase at the moment, it’s like crashing around from meal to meal :o. Thanks for the tips!

Hi Ryan, Skimming through this thread and don’t want to derail but...currently having a lot of histamine issues myself (it seems), and wondered how you’re managing to have stuff like avocado and yoghurt while on a low histamine diet. I currently seem to be set off by almost all food so...

Stat is probably the best health news site there is (in my opinion), so good to see this on there.

Do you have to be so patronising in your approach? I don’t have a horse in this race but some of your arguments come across as a little preachy. I’m sorry if that sounds blunt, but it’s ok if people disagree with your theory of ME. There are plenty of them around.

He has done this across reddit too, on the subreddit r/cfs where he got annoyed at “trolls”, I.e. patients pointing out that his points of view were toxic, and set up his own subreddit r/cfsme. Fortunately no one really visits it.

Great perspective, thanks for articulating that Graham! Yes I would agree with that.

I wasn't disputing that. I was just saying that I don't think it works particularly well as an advocacy tool for those outside our little bubble.

I think you’re right. I know I’ll probably get heat for this but I find the obsession with picking apart a trial that happened 7 years ago as a poor advocacy tool to onlookers. All of that is important but what matters is where we are now - treatment is inadequate, patients are not being...

I’m not sure whether this is a complete misunderstanding of the scientific method, but it seems to be ridiculous how often an ME/CFS study comes out that is just ME/CFS patients compared to healthy controls. The authors of the study then proclaim that they’ve found significant differences...

Worked 11 hour shifts 5 days a week, went to the gym 3 times a week, played three sports, travelled. Etc. It’s been a bit of a drop off since then :nailbiting: