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    Article: Recovering from chronic fatigue syndrome as an intra-active process, 2019, Synne Groven and Dahl-Michelson

    This woman's story actually appears to follow a very similar time frame to my first bout and there is overlap of some of our experiences. I went for acupuncture at the insistence of my family but other than having a nice lie down I experienced nothing. I then gradually improved over the next 2...
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    ME/CFS success story: Lightning Process on Youtube 2019

    The vast majority of the positive comments are from accounts with zero activity which is a bit suspicious.
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    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    It's at about 1:50 as part of the new preface to the podcast.
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    The Guardian's Science Weekly podcast - 2 November 2018 - What role should the public play in science?

    I agree but maybe there is a tiny sliver of hope that they might question what they are spoon-fed by the SMC et al next time. Given the author of the podcast is the science editor, they can't claim they didn't know there had been problems before. I think this is also a glimmer of light in that...
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    ME Association guest blog: "My daughter and the pervasive dangers of PACE in paediatric M.E." by Adam Johnson

    I often think of The Secret Garden in that context now. The logical part of my brain would hope people could separate outdated and misplaced ideas of disease and recovery but unfortunately what you say @Trish probably has some truth to it. It must have been a much more terrifying world as a...
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    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Wow, snark much Prof? Good to see he is maintaining the level of professionalism on social media that he himself wishes to receive. What a flipping hypocrite (and I don't really mean flipping!) edited for spelling
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    Esther Crawley (2019) Physical activity patterns among children and adolescents with mild-to-moderate CFS / ME [baseline accelerometer MAGENTA data]

    Hope this isn't off topic but my recent experience definitely refutes this. I know we all know already it was nonsense from the outset! Over the last month or so there has been a definite upswing in my health, (which weirdly is following a similar time frame to my previous milder illness). As...
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    UK benefits advice: Universal Credit and limited capability for work

    Don't let your intelligence fool you into thinking this system is manageable - it defies all logic! I can't say for certain because I am in a different situation to you in that I claim UC in the support group due to my complete inability to work but I think the limited capacity group would need...
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    Monitoring treatment harm in [ME/CFS]: A freedom-of-information study of National Health Service specialist, 2019, McPhee et al

    That recent, awful account of the boy that sacrificed almost his entire cognitive/speech/mental abilities whilst undergoing GET is a terrifying continuation of this sort of twisted attitude. It doesn't bear thinking about that there are people who will be OK with this approach. I know they are...
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    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Presumably they reached an agreement; either the authors or Cochrane gave some ground...
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    Article: How Monsanto manipulates journalists and academics

    Thank you for this, it's well written and easy to understand. I am very defensive about KK because of the way she behaved over her David Tuller 'investigation' and other M.E. related articles. If she'd have included information like that in your link it would have been helpful, just laying out...
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    Article: How Monsanto manipulates journalists and academics

    That's not why I found the article interesting. More that it's another situation where Kate Kelland appears to have been a journalist for hire without making it clear that that is what she is doing. Who the company is or what they are promoting isn't my point. I personally think that in the...
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    Article: How Monsanto manipulates journalists and academics

    This opinion piece is very interesting because of the players mentioned; an old friend from Reuters crops up and also a new friend who we discovered in the last week or so: the American Council on Science and Health (ACSH) who were behind the doxxing article which mentioned Michael Sharpe. I...
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    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    The interview is in podcast form, I've listened to it so you don't have to! There is absolutely no mention of ME/CFS in this interview; I tried to take rough notes as I went along. It's definitely suggesting more of a philosophical approach to the subject of psychomatic medicine in this special...
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    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Please do, would anything from your Grand Rounds yesterday be appropriate to include? Your previously stated views on CBT for ME being morally/ethically wrong would be a good rebuttal to this.
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    'Activist Editor' Richard Horton of The Lancet receives $100,000 Roux Prize

    The most ironic/passive-aggressive use of kind regards I've ever seen!
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