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I have exactly the same! Especially the ear feeling. Ear pressure is often an indicator of neck problems. Saw this being reported quite often on a spine forum.

This is one of my main symptoms. It is this feeling of stuffyness and pressure around my nose that just won't go away. I've never had an allergy in my life and all allergy tests I've done are negative. CT scan showed no sinusitis. Nasal sprays do not work. It is much worse during crashes and...

I am no expert, but the diagnoses listed usually do not cause spinal cord compression or neurological symptoms. The most common culprits are herniated discs and narrowed spinal canals. As long as the spinal cord is not being compressed, there should be no cause for concern. If there was...

My guess would be the latter. In order to confirm this, the researchers need to have sedetary / bedridden / deconditioned individuals as a control groups rather than healthy and active individuals. It is beyond me why this isn't done more often in ME / CFS research. Deconditioning could have a...

In my opinion that idea is totally wrong. There's just too much evidence to the contrary. It might be possible that some people are healthy despite being obese, but those would be the exceptions, not the rule. An analogy would be a person who smokes all their life and lives to be 90, yes it...

The correlation between poor diet and poor health is mediated by the weight variable. Making a causal link between poor diet and poor health, might be obvious. However, there are many instances of people with poor diets who are healthy. A causal relation between high body fat levels and poor...

I looked up a study regarding the CPET test that snowdrop mentioned. They did 2 tests, meant to push the subject to failure. In the table attached below you can see the maximum power reached in watts. It seems that, the CFS group had reduced power ouput (stamina) even on the first test. So...

Yes I was surprised by this too. In the ICC criteria for example PEM is a requirement, but stamina is not mentioned. In my opinion it should indeed be in the criteria, as it is something that can be easily and objectively measured, for example with a bike test. I believe that doing this will...

I've had the disease for 17 years now, sudden viral onset in teenage years. It used to be mild, but over the years it progressed. My nr 1. initial symptom was drastically reduced stamina. I didn't have PEM at the time so I was able to exert myself. Before the illness I used to enjoy jogging...

Don't know. But I am surprised that there aren't more animal studies. If there's a way to diagnose the animals, then it should be possible to do experimental studies. Surely, doing an experimental study with a dangerous drug, that requires a long complicated treatment (e.g. rituximab), would...

This describes me perfectly! The difference can be dramatic. For me it happens 12 to 13 hours after waking up, I get more energy out of nowhere, feel less pain and neurologic symptoms and better mood as well. It's very strange and I have no explanation for it. Interesting how we both have the...

Yes, same here, stimulants do not work for me at all. If I drink coffee or energy drinks, I get severe anxiety, dizziniess and bladder issues. In other words it makes my dysautonomia much worse. Which goes to show that there is something quite wrong with my ANS.

It happens whether I am fasting or not. It was a coincidence, that this happened during fasting, simply because fasting makes you unable to sleep. Now of course, fasting has other benefits as well. I would recommend it as well to anyone who can try it (it's not easy).

@Trish Yes it usually persists. I could get benefits a few days in a row. Eventually though, the sleep debt stacks up and I have to sleep for 10-12 hours in one go, wether I want it or not. Basically, many ME symptoms are greatly reduced, but I still feel sleep deprived, so it is not sustainable...

So first of all, let's describe what I am talking about. Basically, I've noticed this pattern: The deeper and longer I sleep the worse I will feel. If I have poor / broken sleep or sleep for a very short time (< 5 hours) my symptoms are greatly reduced. When I sleep well or long I get symptoms...

This is quite amazing and describes me perfectly. I also had the same trigger (viral gastrointestinal illness) and it happened at the same age (12). My symptoms were quite similar, except my illness had been mild until it started getting much worse a few years ago. The more I read about this...