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  1. Marco

    "Exquisite sensitivity to medication"

    I have to add, the reason I started with meds as opposed to other 'sensitivities' which I've also strayed into, is that other sensitivities may be hard to measure objectively. For some meds (e.g. beta blockers) the expected effect (reduction in heart rate for example) can be measured and while...
  2. Marco

    "Exquisite sensitivity to medication"

    Same here. I don't recall any 'sensitivities' to meds prior to onset but did have a few true allergic reactions to certain antibiotics. But again I didn't need many meds and prior to onset I hadn't needed to see a doctor in 10 years. But growing up (again prior to onset) I was sensitive to...
  3. Marco

    "Exquisite sensitivity to medication"

    I'm not quite sure where that exact wording comes from; perhaps a quote from Ostler's Web : The Canadian criteria also include : I'm not sure how common this is but it does apply to me. Two anecdotes. When I was working I was having major problems with heat intolerance/overheating and my...
  4. Marco

    Autism in France - Psychoanalysis

    Thanks @Valentijn (presumably).
  5. Marco

    Autism in France - Psychoanalysis

    Could the mods change the thread title to 'Autism in France - Psychoanalysis' ?
  6. Marco

    Autism in France - Psychoanalysis

    Spare a thought to those on the autism spectrum in France where psychoanalysis is still the default route. A long but interesting read : France faces down its outdated notions about autism https://spectrumnews.org/features/deep-dive/france-faces-outdated-notions-autism/
  7. Marco

    IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments

    Nitpicking point Jonathan that doesn't in any way negate any of your other comments but as I understand it the behavioural part is not just a outcome of changing beliefs but and integral part of the process. For example with a phobia, you may claim to have changed phobic thoughts but it...
  8. Marco

    Warm brain

    Here's a video Younger put on YouTube explaining what he hopes to do :
  9. Marco

    Warm brain

    You will probably be relieved to hear that Jared Younger is using brain temperature (much simplified) to try to determine if neuroinflamation plays a role in ME/CFS. Cort's site has a 'blog' on it. I get the same feeling when concentrating too long or standing too long - it builds up as the...
  10. Marco

    Format of NICE stakeholder meeting?

    People coped with long term illnesses well before CBT came on the scene and I'm not convinced it offers much more than tea and sympathy. It does seem to be pretty ubiquitous these days so what do I know.
  11. Marco

    Suggestions for research that creates new data?

    I'd like to know if there is impaired early (i.e. pre-attentional) sensory processing in PWME, particularly somatosensory.
  12. Marco

    Format of NICE stakeholder meeting?

    I'm struggling to think of a way in which 'supportive CBT' would be useful to me in 'managing' ME/CFS that would be superior to a mix of (my personal) experience and common sense.
  13. Marco

    Jeremy Hunt?

    Except that it happens to be true in the French system which I'm familiar with and likely to be also true in other national healthcare systems using mixed public/private funding and provision. http://www.cleiss.fr/docs/regimes/regime_france/an_1.html
  14. Marco

    Jeremy Hunt?

    Does Germany not have an equivalent of the French CMU/PUMA (a 'safety net fund' available for those not covered by work based contributions or on low incomes)?
  15. Marco

    Jeremy Hunt?

    Sounds to me like the sort of adult conversation we need to have and 'international best practice' is taken into account in determining policy in most other areas.
  16. Marco

    Jeremy Hunt?

    You obviously think it will. ETA - Hit the button before I meant to. But surely there's a consensus that separating NHS primary care from social provision was a bad idea. Now that's been rectified. Perhaps wait and see before - tell me it's not true!
  17. Marco

    Jeremy Hunt?

    Relevant to ME specifically?
  18. Marco

    Daily Fluctuations of Progesterone and Testosterone are Associated with Fibromyalgia Pain Severity, 2017, Younger et al

    I'm not sure what to think of this. When he found that fatigue tracked leptin levels in ME/CFS (and the same I think for fibromyalgia) it looked like a promising and potentially specific link. But if all sorts of hormones also track (negatively in this case) symptoms are we getting closer to...
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