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I am choosing to take action, because simply posting to this thread will not get drugs into the FDA pipeline. If you have a better idea, feel free to pursue it, and I will cheer you on.

Thanks so much for the encouragement!!

Would you read the Guardian for some slightly “used” coffee from Ms P? How about a free coupon for a vaginal steam (worth $100)? If not, then you are simply never going to read the Guardian. So run along now.

Sorry, but I feel the process of relying on the academia method with it’s lack of government funding is not working for ME. Maybe it works for other illness, but I don’t see it working for ME in my lifetime. Other paths must be created.

I just finished up some research, and now have my first Pharma identified, I plan to contact. Wish me luck!!!

Thank you @Hip

So we don’t have enough quality researchers? I disagree, the iPhone and iPad were not clearly defined 30 years ago. For ME, the concrete objective are FDA approved drugs. You are saying the human body is a complete unknown? Are there not already thousands of published papers? Why would...

Research IS a journey into the unknown, no matter if it’s chip design or medicine. Yes, the Agile approach makes more sense.

Thanks for the information. Do you recall the name of the Pharma’s?

Honestly, if I have to drive this agenda single handed, then I will. It’s really up to Pharma to listen or ignore me. I have sat back for way too long on patient forums, waiting for things to change, and nothing changes. Again and again, we have been told by many researchers that ME research...

I want to see treatments in the FDA pipeline. I don’t care about published research, it’s too slow, too cumbersome, and too political. There is not enough funding for the perfect research papers we want to see published; let’s all be realistic. We need Pharma onboard. We need to take action.

I appreciate all the legit researchers who study ME. But I would also appreciate seeing some timelines and milestones. If researchers are asking people to commit to making donations, then I feel it’s appropriate for the researchers to make commitments. It seems there is a strong need for...

Done ✅

http://www.zdnet.com/article/could-your-apple-watch-save-your-life-how-smartwatch-sensors-are-helping-tackle-a-dangerous-heart/ Could your Apple Watch save your life? How smartwatch sensors could help tackle a dangerous heart condition A collaboration between Cupertino and Stanford...

I think if Unrest wins the Best Documentary Feature, it will bring on the star power required to break the stigma, raise awareness, and raise funding. Similar to what Elizabeth Taylor did for HIV, a famous person could change the course of ME. It’s our time to shine! We have been hidden for far...

It’s only for IP addresss located in the United States. I just updated the post to reflect that. Thanks for checking!

Thanks for checking. I just read this on the PBS site. “ ERROR MESSAGE SAYING THAT I'M OUTSIDE THE UNITED STATES Some of our content producers require that we only make their content available to residents of the US. For content distributed via the Internet, including our iPad and iPhone apps...

I received injections every 6 months, for over 5 years. I never had any issues. I love the stuff! I agree we all react differently, so some people use Dysport instead. Hope you can get relief soon.

@LucyLouWho Have you tried Botox injections? https://www.sciencedaily.com/releases/2012/10/121013174117.htm

http://www.pbs.org/video/unrest-yatc3g/ The link works for me, in the US, but don’t know about other countries. Happy Viewing!!! :emoji_popcorn::emoji_pizza: