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  1. Lou B Lou

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    And Kendall said people can request a reassessment. If that happens before November 2026, that will be under the old system. After that, it will be under the new system, she said. UPDATE: The DWP say Kendall mis-spoke, and that in fact existing claimants will be reassessed in future under the...
  2. Lou B Lou

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    . 'Liz Kendall just confirmed in the HoC that existing claimants requesting a reassessment due to worsening conditions after Nov 2026 will be subject to the 4 point minimum criteria. So much for all existing claimants being protected.' #TakingThePip Tweet by Orc1Nus .
  3. Lou B Lou

    How should biological researchers present their results about ME/CFS to the media - discussion thread.

    And don't call the illness "Mysterious". Or "Baffling". Or "Chronic Fatigue". Some researchers still do.
  4. Lou B Lou

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    The org Disability Rebellion have suggested writing to the Speaker of the House of Commons to request that the Welfare Bill should not be treated as a Money Bill, because if it's a Money Bill it would not go to the House of Lords for scrutiny, debate and amendments. They have produced a...
  5. Lou B Lou

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    ' 'Minister Stephen Timms has finally admitted that spending on working-age benefits is stable, and is not spiraling out of control, despite months of claims from his own department and fellow ministers.'...
  6. Lou B Lou

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Now Starmer et al are touting 'concessions' to the Bill to pacify the rebel MPs. But that will be a trick. One suggestion is changing the 4 Points in one Activity of Daily Living PIP requirement to a 3 Points in one Activity of Daily Living PIP requirement. That is the trick. Because...
  7. Lou B Lou

    How should biological researchers present their results about ME/CFS to the media - discussion thread.

    Chronic Fatigue Syndrome is named in the Equality Act 2010 - as an example for making workplace adjustments for disability I seem to remember. If anyone feels like trawling through the Equality Act to locate the mention ...
  8. Lou B Lou

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    The Times 20/6/2025 at 9.10pm 'A dozen ministers could quit over Starmer’s disability welfare cuts' 'Government figures say they will oppose reforms to personal independence payments and universal credit, while some believe the vote will have to be pulled' 'As many as a dozen members of...
  9. Lou B Lou

    PEM-like descriptions and accounts in non-ME illnesses

    'Note the Beyond ME/CFS IOM report discusses healthy controls having PEM. "The prevalence of PEM in healthy control subjects is considerably lower than in ME/CFS patients, ranging from 4 to 8 percent". Page 80 - https://www.ncbi.nlm.nih.gov/books/NBK274235/pdf/Bookshelf_NBK274235.pdf ' Healthy...
  10. Lou B Lou

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I am not clear about any of those. It is worth putting those points to DPAC, or Benefits and Work to get them clarified. Also the position of people with Contributions linked ESA needs spelling out.
  11. Lou B Lou

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Disabled People Against Cuts (DPAC) today (19/06/2025) 'The second reading of The Universal Credit and Personal Independence Payment Bill will be on Tuesday, 1st July 2025. This is when MPs will vote on disability benefit cuts. It’s vital you contact your MP and keep piling the pressure on.'...
  12. Lou B Lou

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    'The Politico website has claimed that a bill to cut disability benefits will be introduced to parliament next week, allowing the first vote to take place as early as 30 June. Whilst we have no way of knowing if this is correct, Labour are definitely running out of time if they want the bill to...
  13. Lou B Lou

    Who is Simon Wessely?

    Eventually there will be no awards or titles he hasn't courted his way to getting. With the exception of 'Prime Minister or 'King' perhaps.
  14. Lou B Lou

    It’s ‘time for a conversation’ on assisted suicide dangers, says Liz Carr, ahead of BBC1 documentary

    The Royal College of Physicians, Today June 9th 2025: RCP Tweets: 'We have raised concerns about existing deficiencies in the Terminally Ill Adults (End of Life) Bill. We believe the bill in its current form lacks adequate protections for patients and professionals. Full statement...
  15. Lou B Lou

    Mi-Trial Clinical trial companion app and portal by ELAROS

    Post copied from this thread about another app developed by ELAROS: The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app 'Mi-Trial launches innovative new clinical trials app and portal to improve trial...
  16. Lou B Lou

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    'Mi-Trial launches innovative new clinical trials app and portal to improve trial participation and outcomes' Professor Paul O’Brien, Elaros CEO, said: “ELAROS is delighted to be part of this exciting new venture where we can bring our extensive experience of developing clinical and research...
  17. Lou B Lou

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    What junk is this? These activities are not in the least bit comparable. "Moderate activities: How much difficulty do you have with activities like moving a table, pushing a vacuum cleaner, bowling, or playing golf?"
  18. Lou B Lou

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    'Our speakers: ME Association will share progress on the development of a new clinical assessment toolkit for PwME in collaboration with University of Manchester, alongside a range of options to make the toolkit and various support resources digitally accessible for both clinicians and patients...
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